My 24 year old daughter who was dx'd in Nov of '05 with AML subtype m4) underwent a sct in April of '06. and it was sucessful. (matched unrelated donor). She was 19 months post transplant when she developed complications in the lungs, She was admitted to the hospital, for shortness of breath. they immediately put her on Iv meds, for anti-fungal infections. After a week, and no improvement, and a second ct scan. Her lungs, showed what they said looked like broken glass or opacity of the lungs. they did an open lung biopsy, which showed absolutely nothing. She died of a blood clot to the lungs.about three weeks after the beginning of her labored breathing.
My question to anyone is this? Has anyone had a loved one , who had the same issues from a sct? the shortness of breath. and the cat scans that seemed to show , perhaps spots on their lungs? only to have the biospy come back and show nothing? The lung dr.s to this day, have no idea why she had such labored breathing? Surely this happens more often , to those who undergo a sct? The complications from, a transplant are numerous, and from what I have read on the internet, the most often cause of death, is lung problems, due to the extensive amount of chemo they use, along with total body radiation..needed before the sct.
Is there anything that could have been done to prevent this problem from taking her young life? I miss her so much, Its been onlly 4 months ago, she passed away.
thank you for listening to my story.