Breast Cancer Mets to Spine

13 Posts | Page(s): 1 2  Next 

Breast Cancer Mets to Spine

by Brooke on Sun May 29, 2005 12:00 AM

Quote | Reply
My sister has just been diagnosed with breast cancer (still uncertain about lymph node involvement) and was given a bone scan which revealed metastasis to the spine. The info I have been reading on the web is VERY worrying, am I to be realistic in expecting a survival rate of 16% for her (She is only 36 and will soon begin treatment but doctors have not given her a prognosis)

Breast Cancer Mets to Spine

by Sweetblonde on Thu Jun 02, 2005 12:00 AM

Quote | Reply
Hi Brooke, I do not have the above mets (keep praying it stays that way) despite lots of scares the past month....but after reading your post, wanted to send my prayers for your sister. It is a scary time, and if I can share anything from my own experience, it is 'ask lots of questions' and don't let the doctors fob you off. It is your sister's body, and she has the right to know whatever she is comfortable knowing. If they have not given a prognosis, ask them what they can tell you at this point. They may still be waiting for more test results to be able to do this, but asking will not hurt. Do you have the pathologist report yet? I researched mine on the internet, and wrote questions down, and then asked my oncologist and radiolgist questions; I found the latter was much more accomodating. I also joined a breast support group at the cancer clinic for 'women living with breast cancer'. At first, I did not want to associate with others who had cancer, as I wanted to feel as normal as possible, but I can tell you, I am so glad I went now, the women are wonderful, supportive, we laugh and cry together, and it is amazing how much knowledge we have collectively! Please pass my regards to your sister....take one day at a time. (Jane)

Breast Cancer Mets to Bone

by Debra_S on Tue Jun 14, 2005 12:00 AM

Quote | Reply
Brooke, I was diagnosed with breast cancer just before my 41st birthday. I went thru two breast surgeries, chemo, & radiation. I was clear for nearly three years (I had one lymph node test positive). Then the tumor marked started up. Tests showed metastasis to my liver. This time, I went to the Cancer Treatment Centers of America in Zion, IL for treatment. It is a great place. The lesions in my liver have shrank, but had a couple of places in my back (spine) show up on bone scan. Was having quite a bit of pain. Doctor started treatments of Zometa every month. After approximately nine months to a year pain is gone. Tumor marker is in the "normal" range and I feel great. Praise the Lord. It is only due to Him that I am here today to share with you of His goodness and mercy. He has shown me thru the Cancer Treatment Centers of America and others that our diet is an important part of regaining a healthy body. If you have any questions, I would be glad to share my experience with you and I will be praying for your sister. Debbie S.

bc Mets to Spine

by Loree on Wed Jun 22, 2005 12:00 AM

Quote | Reply
Brooke, Please don't look at the percentages. They do not take into account the age of the person, physical health, etc. They also do not separate bone mets from other types of metastatic disease. I saw the same number and went into a blue funk. I was 44 when diagnosed with stage IV invasive lobular and dcis, also with bone mets in spine. Neoadjuvant chemo, simple mastectomy (no nodes taken), radiation to chest wall, supra and sub-clavical. Radiation oncologist felt he could get nodes, so surgeon agreed that I did not have to have them removed. I had appx 36 cycles of radiation, 24 to spine--only to largest area of lesions. Diagnosis was July 2003; it's now 2005 and I have found new lesions in my spine after having been in complete remission since chemo. Cancer was found in one ovary when I opted for hysterectomy to shut down ovaries. Tell your sister to hang in there, so long as it doesn't travel beyond the bones, to any "vital" organs, she can see 5 years come and go (and some have gone a lot further than that.

Breast Cancer Mets to The Spine

by Triciaj on Tue Jun 28, 2005 12:00 AM

Quote | Reply
Dear Brooke, Cancer is not necessarily a death sentence! There are more amazing treatments out there than ever before. I have survived over 20 years with breast cancer. It was diagnosed first in 1985, had double mastectomies, nothing more. It went to my spine in 1990, in T9 and T10 vertebra. I had tamoxifen only for 5 years, also used positive mental imagry and changed my diet to less fat and sugar. My last MRI report 6 years later said "healed metastatic breast cancer". Then 14 years later, a year ago this month, I had a heart attack and in doing a CT scan in prep for heart surgery, cancer nodules were found in my lungs. My cancer is her2positive this time, very aggressive and fast acting. I was on navelbine, femara and herceptin for 6 months, now only femara and herceptin. Again I am using mental imagry (psychonueralimmunization) and a Ph and vegitarian diet. The nodules have not grown or changed in a year.Now there is a hint of something in the T11 vertebra and I will have a bone scan soon, but I am not too concerned.Tell your sister to hang in there and stay positive. No one can predict life expectancy for sure. A lot depends on taking charge of your body , having faith and staying positive! Best wishes, Tricia

Breast Cancer With Mets to Spine

by Barbara_g_9 on Wed Jul 06, 2005 12:00 AM

Quote | Reply
Hello, I found your message inspirational and I wanted to take the time to thank you for that. Al of the tests we have to go through, then waiting an wondering...it's enough to make you crazy if you let it. I read about all that you have been through and youmust be a very strong person. I am trying to be strong, too. I go tomorrow for a core biopsy for a possible recurrence in my left breast--original site. I am feeling positive..hope I don't get any bad surprises. Again...thanks for posting a great message! Barbara G.

Met to Spine

by Sara123 on Thu Jul 07, 2005 12:00 AM

Quote | Reply
So glad to find these messages. I have just been diagnosed with breast ca. MRI showed lesion on spine which was confirmed by a biopsy to be positive. My outlook had gone from hopeful to why bother with the realization that this stuff is loose in my body. The dr is no longer talking surgery, but just taking hormone therapy drugs. If others have gotten through, maybe I can too.

Mets to Spine

by Barbara_g_9 on Fri Jul 08, 2005 12:00 AM

Quote | Reply
Hello Sara, Your story is very similar to mine. After having a lumpectomy, the bone scan was initially read as negative..then my physician received a "hard copy" which inidicated a suspicion of a met. Up to that point I had been Stage II--curable. I had a biopsy also, which confirmed it. Did they mention radiation...I had a lumpectomy...one course of chemo (1 dose) then I was put on femara...had radiation to breast and to spine....the spine is healed. At this point I feel there is no evidence of cancer (which may not be a cure..but could be a good way to live for now. I have those moments where the "boogie man" comes into my head and scares the hell out of me..with thoughts of statistics and Stages and what not...then I put him away..and work full time, spend time with my grandchildren and golf when I can. Ask questions...ask for second opinions...I go to University of Penn (which is about 45 minutes from my home, but felt they have more experience then the oncologist here. You need to do some research on your own behalf Sara; you are too young to just let go. A met to the spine is not to a "vital organ"--I am 1and 1/2 years out and all my test results have been clear. I have been living a normal life and feel that I will for quite a while...for years.(I am 52 now--49 when diagnosed...by no means old:-) Don't give up.....don't give in to statistics....there are so many factors that influence those numbers. I am an RN, I know what this stuff is about....if you need guidance or support. I know how it feels----I felt doomed too...and then I pushed myself out of that terrible feeling with the help and support of those around me. Talk to a counselor (some are associated with the Cancer Centers) This is quite a process...not always easy...but we must take control of what we can. My thoughts are with you; know that there is a support system for you. Barbara

Also Mets to Spine

by Cancer_Sucks on Mon Jul 11, 2005 12:00 AM

Quote | Reply
I also have mets to spine, dx in Feb. 05 with bc, dx with mets in March 05. I am not on chemo, zomata injections once a month, tamixfhen, zoladex once a month. I have learned that you cant live by statistics, it will eat you alive inside. My last bone scan showed a little shrink of tumor on spine, also has not spread. I am 36 with a 9yr daughter. Cannot find to many women in my area with mets, looking to keep in touch with somebody with same experience I am going through. Any advice treatment suggestions. Love to hear from you. Praying for cure... also wondering how you are doing on hormone drugs?

Also Mets to Spine

by Ciara on Fri Aug 26, 2005 12:00 AM

Quote | Reply
Hi Tina M I was diagnosed almost a year ago with breast cancer with mets to spine and liver. I spent a month in hospital unable to walk because of the cancer in my spine and was given one dose of radiotherapy and then given six doses of chemotherapy. Most of my family didn't think I’d get out of hospital less than six months later I finally moved back into my own home after staying with my mum for about four months. I too am 36 and have a 13 year old daughter and its because of my daughter that I’ve willed myself to fight this although I’ve been told I can't be cured I’m determined to be here for her for as long as is possible. The only way I’ve been able to cope is with positive thinking and determination. Only this week I’ve been told I need more chemotherapy and that was a shock but once again my spirits are up and the positivity is stronger than ever. I hope this helps a little. Stay positive and good luck Kira
13 Posts | Page(s): 1 2  Next 
Subscribe to this message board discussion

CancerCompass Survey

If you were considering traveling for cancer treatment, which headline would you find more interesting?

Get $75 for taking a research survey

We care about your feedback. Let us know how we can improve your CancerCompass experience.