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Just Found This Site &Joined Immediately

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Subject: just found this site &joined immediately
Date: 03/07/2008
I've been a suvivor of RCC since "99". It met to lung lymphnodes and bone in 6/07. Been thru  IL2 radiation and Sutent. Dr now wants to start Torisel. Any advice 
Subject: RE: just found this site &joined immediately
Date: 03/07/2008

Hi!

   I am so glad that your doctor is providing you with those very promising treatments.  If you don't mind me asking, what is your history with Renal Cell Carcinoma?  What stage did you discover this tumor, when was it removed, your age, and which specific type of Renal Cell was it (i.e. clear cell , papillary?

 

Thanks!

TOM

Subject: RE: just found this site &joined immediately
Date: 03/07/2008
Tom, Iwas diagnosed Feb. 1997 w/ clearcell stage 4. Iwas 45 at the time. The kidney was removed and all margins were clear. Then 6/07 I had mets in lymphnodes in lungs in  Dec it was in the bone in lft. shoulder. So here I am. Thanks for reply       John
Subject: RE: just found this site &joined immediately
Date: 03/07/2008

John, Hi!  How are you?   What are the possible treatments for your situation?  Is radiation an option?  I wonder why so many people are developing these RCC's.  Did you ever smoke?

TOM

 

 

Subject: RE: just found this site &joined immediately
Date: 03/08/2008
Tom, Hi! Radiation is out so is sugery. My Dr is recommending Torisel Should find out on thurs 14. I"ll keep you posted    Take Care   John
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LuvMyDad07
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Subject: RE: just found this site &joined immediately
Date: 03/10/2008

 

On 3/8/2008 jorolo1 wrote:

Tom, Hi! Radiation is out so is sugery. My Dr is recommending Torisel Should find out on thurs 14. I"ll keep you posted    Take Care   John

Hi. My dad did radiation to his bone mets and is on sutent 50mg. Wondering why rad. and surgery are out?

Good luck!

Subject: RE: just found this site &joined immediately
Date: 03/11/2008
LuvMyDad07, I meant the rad. didn"t help and sugery of mets in lungs was out. I"m unsure about the Torisel, I guess it will depend on amount of time left with & without it. Wish your Dad the best.  John
Subject: RE: just found this site &joined immediately
Date: 03/13/2008

 

On 3/7/2008 TOMMYNYC wrote:

John, Hi!  How are you?   What are the possible treatments for your situation?  Is radiation an option?  I wonder why so many people are developing these RCC's.  Did you ever smoke?

TOM

Tom   Hi  just returned from my Dr. . Seems the Sutent is still working.. there wasn't any growth & some were alittle smaller. I will start my third round of Sutent tomorrow. Keep hangin in cause every day is a gift  Take Care    John

 


 

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