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Subject: RE: high grade displaysia
Date: 03/15/2008

 

On 3/11/2008 blondegirl wrote:

 

On 3/10/2008 kathryn73 wrote:

You have no idea how helpful your email was. Thank you! I have put so much thought into what the "best" decision is regarding something like this. It is so unexpected and totally scary. I emailed my doctor last night and told him that after the LEEP I wanted to schedule a hysterectomy. I am of the same mind as you, I have two boys who need me and I am not willing to risk this getting the best of me. I hope yours goes well, are you getting it done soon? Thank you again.

 

I am glad that I could help! My surgery is next Friday and as it gets closer I get more and more nervous but at the same time I thank god that I will was given the chance to do something about it! I will get thru this just like the c-sections and biopsy! It really helps so much that you can come here and have someone to talk to that is going thru the same things! I was so scared when all of this started I would just go to my doctor and cry but he assured me everything would be ok! I just think in my situation it would be best to have the surgery and just get it over with. I will be out of work for a few weeks so please keep me updated with you. I hope everything works out for you! You will be in my thoughts and prayers!

Been sending warm healing thoughts your way blondegirl!! and katheryn, you are in my thoughts as well.  I hadmy cervix and uterus removed in 97.  Had I not had that done, I wouldn't likely be here today.   Best to you both.  Please post to let me (us) know how you are!!

Subject: RE: high grade displaysia
Date: 04/02/2008
I have CINIII. I had a LEEP done last March '07. My husband lost his job and I lost my insurance. We're on a new plan now and I wasn't abel to keep my doctor. My new doctor didn;t even want me to come in. He said schedule in a year. I found out he never even got my medical records! My last doctor went over the lab results with me and the margins were not clear. I was refered to an oncologist/GYN and he reccomended hysterectomy. The new insurance considered everything preexisting until this February. I had to really push just to get an appointment for April 18th. Now I have watery blood, low back pain, my vaginal walls that I can see looks like brains!! I have painful sores around my urethera where I pee. It looks like polups or something all over too. My old doctor wasn't too concerned. He tried to look at it with the forcepts in. I was frustrated when he said every women has folds. I know my own body and it is changing fast. That was a year ago and now it's rough and lumpy all over. It's getting sore too. Sex is painful. Some days are better than others, and at times it's excrutiating. Good thing the lights are out, because I feel guilty crying.. but I hate ruining it for my husband with all my pains all the time. Now I fear having to have all of this to be removed. I know my husband would still love me, he's a great man, but I just won't feel like a woman without a vagina! I would rather loose it though, than die. My children need me. I really am not ready for that. I just have a really bad feeling about all of this. Julie
Subject: RE: high grade displaysia
Date: 04/02/2008

you're in my prayers Julie.  I am assuming from your description that you have HPV that is active.  I will Keep my fingers crossed for you.  Letus know what the new Doc has to say!

  Best wishes, Lori

Subject: RE: high grade displaysia
Date: 04/02/2008

On 4/2/2008 lorilocks wrote:

you're in my prayers Julie.  I am assuming from your description that you have HPV that is active.  I will Keep my fingers crossed for you.  Letus know what the new Doc has to say!

  Best wishes, Lori


Thanks Lori, This is so nice to have other people to talk to about this that understand. I'll post after I see the doc on the 18th.
Subject: RE: high grade displaysia
Date: 04/08/2008

 

On 3/15/2008 lorilocks wrote:

 

On 3/11/2008 blondegirl wrote:

 

On 3/10/2008 kathryn73 wrote:

You have no idea how helpful your email was. Thank you! I have put so much thought into what the "best" decision is regarding something like this. It is so unexpected and totally scary. I emailed my doctor last night and told him that after the LEEP I wanted to schedule a hysterectomy. I am of the same mind as you, I have two boys who need me and I am not willing to risk this getting the best of me. I hope yours goes well, are you getting it done soon? Thank you again.

 

I am glad that I could help! My surgery is next Friday and as it gets closer I get more and more nervous but at the same time I thank god that I will was given the chance to do something about it! I will get thru this just like the c-sections and biopsy! It really helps so much that you can come here and have someone to talk to that is going thru the same things! I was so scared when all of this started I would just go to my doctor and cry but he assured me everything would be ok! I just think in my situation it would be best to have the surgery and just get it over with. I will be out of work for a few weeks so please keep me updated with you. I hope everything works out for you! You will be in my thoughts and prayers!

Been sending warm healing thoughts your way blondegirl!! and katheryn, you are in my thoughts as well.  I hadmy cervix and uterus removed in 97.  Had I not had that done, I wouldn't likely be here today.   Best to you both.  Please post to let me (us) know how you are!!

Thank you so much for all of your thoughts! The surgery went well and my margins were good!!!! I am so happy and can finally breath! I really appreciate your support it is so nice to have people who have gone thru the same things to talk with! I hope that all of this is over with now! I am still really sore since I had to be cut again but it was worth the pain. It was worse than my c-section because the dr said I had unbelieveable scar tissue and it was a good thing that I didn't have anymore kids. Thanks again for all of your thoughts.

 

Subject: RE: high grade displaysia
Date: 04/17/2008

Hi Julie,

I haven't checked this site for quite a while. After I had my LEEP I found out that I have adenocarcinoma in situ in my cervix. Totally unrelated to the CIN III. I am scheduled for a hysterectomy on May 13. I hope you are thinking positive and I am sending positive thoughts your way. What a scary and unpredictable time for us huh?

 Please email me if you want to talk, vent, cry, celebrate, whatever. I am thinking of you.

 Katie

 

 

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