my Mothers Mmmt Story (the Short Version)

I was just wondering what the ctscan revealed. My mother's experience is so much like yours too. She was diagnosed in May, MMMT, stage 1C. She refused chemo and radiation but has recently decided to take the radiation. She started about 2 weeks ago. So far, there's no sign of recurrence. I just thought it odd to find someone with such a similiar story. Any info would be great. I know this is a nasty cancer and I've done alot of research so I'm well informed but anything new would be great. Good luck and I so hope your mom is well.

I was wondering how your mother is doing. How did the radiation work for her? Did she do chemo as well? My mom was diagnosed in early August and her situation sounds similar to your mom's. It seems to grow extremely fast. My mom is supposed to start radiation and chemo in the next week and I was just wondering how it went for your mom and how all of the side effects are. It is so hard to see my mom in so much pain and so week. Any information or advice is appreciated. Thanks!

I'm not sure if you were asking me that question or not so I'll reply just in case. She done great with her radiation. Tomorrow is her last treatment and then she'll have internal radiation (brachytherapy) so we're unsure how many times she'll need that. She had no real side effects from the external radiation. One bout of diarrhea with severe cramping through the whole 5 wks. She would get tired afer each session for about 3 hrs and then would be fine. Everyone is different though. Everyone's experience can't be compared to another's. There is late effects that can start months after radiation has ended. I hope your mother does great through her treatments!

I stopped searching the web for info on Mmmt information for a while. I'm glad to get even the short story of your Mom. I was diagnosed with the same stage Mmmt in June of 2006. I had a total hysterectomy and both external beam and HDR brachytherapy radiation. Finished with that in October, and now feel like a lost soul. Am trying to stay healthy with nutritional plans, exercise, etc., but do wish there were more info on the disease. I did not have a pre-surgical CA 125, but about 1 month post surgery it was at 25. It subsequently dropped to 8, but has been creeping up one digit per month to 12 at the moment. I think the jury is out on the validity of this as a marker for Mmmt metastasis, which of course is what we are so fearful of. Anyone else have any info?

My mom died last week from recurring uterine carcinosarcoma.  She had it 10 years ago, underwent extensive chemo treatments, and survived 10 years. When it came back it had spread to her liver, lymph nodes and abdomen.  She only survived 3 months after the diagnosis. She has 2 chemo treatments, but it did no good.  Gerri

Hello, My name is leann and i am 38 years old nad have been diagnosed with MMMT i have had my surgery and have done my chemo four lots of it 24 hours a day for four days(pretty Brutal) then i did six weeks of radiation and two lots of brachtheraphy, i see my doctor every three months as well as my gyne as well as my chemo doctor so every month i see a doctor but so far so good and it has been twelve months

 

Yippee

hello, i am in australia and i do not know about these markers you are talking about i never get blood taken i only had it taken when i was having chemo to make sure my blood cells had rebooted themselves to be killed agin with another dose of chemo please explain what these markers do?

i am having ct scans every three months as after my surgery they told me that they did not have aclear margin on my left side, but so far so good, i am very young to have this disease so the doctors have told me, i feel very lost and there is not alot of research into this disease and can not find alot about it either just been told very aggressive and do not get to excited as it is a very bad cancer

 

Hi there.  I'm new to this site.  My Mom has recently been diagnosed with MMMT, and she's scheduled for surgery March 4.  What were your symptoms, and how long did you have them before diagnosis/surgery?  Wishing you continued wellness.  Thanks, Patty

 

On 7/26/2005 Wvgal wrote:

I have a simular situation I have been diag. 1B grade 3 cancer. Surgery TAH removal of cervix, tubes and overies. The CA125 is a marker but do not rely on this alone. It has a lot of false negatives. Make sure to have the CA125 (the latest Version - some doctors are not using the latest form of test so ask for the latest one), CT scan and a PET Scan every 3 to 6 months for 2 years. Doctors will combine the CT with the PET. The pet is the best test out there.... read www.cancercompass.com/cancer-news/1,9400,00.htm

Keep me abreast as to her outcome. I want to follow up with someone that has a simular story as mine.

 

Hello. I'm wondering, where is your relative receiving treatment . Also, do you know if they are using PET for other types of carcinosarcoma such as MMMT?    Thanks for your reply.

 

On 12/28/2006 Snowqueen wrote:

I stopped searching the web for info on Mmmt information for a while. I'm glad to get even the short story of your Mom. I was diagnosed with the same stage Mmmt in June of 2006. I had a total hysterectomy and both external beam and HDR brachytherapy radiation. Finished with that in October, and now feel like a lost soul. Am trying to stay healthy with nutritional plans, exercise, etc., but do wish there were more info on the disease. I did not have a pre-surgical CA 125, but about 1 month post surgery it was at 25. It subsequently dropped to 8, but has been creeping up one digit per month to 12 at the moment. I think the jury is out on the validity of this as a marker for Mmmt metastasis, which of course is what we are so fearful of. Anyone else have any info?

I'm curious to find out how you made out with your therapy. Do you think it was worth it? I have recently been diagnosed and need to make some decisions