My Husband

 PanCan organization  (www.pancan.org) can help you with a lot of questions, but the John Hopkins University Pancreas Chat is a real help to me (my boyfriend has PC).  Lots of people on it with a lot of experience at this awful disease.  The link is below.

 http://pathology.jhu.edu/PANCREAS%5FCHAT/

On 3/20/2008 lisazl wrote:

My father was diagnosed in February, and it came out of nowhere. He was healthy till right after Christmas. I am having a hard time wrapping my head around the fact that he was Ok one minute, and then we were told he had stage 4 metastatic Pancreatic Cancer. It is one of the hardest things to watch. Please know that my thoughts and prayers are with you and your husband.

That is exactly how I'm feeling.  He was so good and then boom it hit us!!

I agree, there is no way to prepare.  I think I'm fine one minute and the next that twisting knot in my stomach is back!  I am very angry that no qualitative, and most likely, no quantitative research has been done and/or put a dent into this awful disease in the past 30 years.  It is such a shock.  Some are really taking a stand and trying to bring attention to this disease...check out the following link:http://www.pancan.org/Volunteer/video_pausch_testimony.html
-Thoughts and prayers, Deb 

My husband was diagnosed Apr 07 with adenocarsenoma with unknown primary after biopsy of lymph glands -no surgery available for that! The primary ended up being pancreas. But if there is any good news in cancer-I believe with the lymph gland involvement and not a major organ he has done better. Better as in that his last chemo(he took Gemzar-new since 96,then 5-FU) was Jan. 16. The blood test CA19-9 is fairly new also. Through pancan we talked to a man who started treatment before Gemzar or CA19-9 was available. he has been cancer free 7 yrs.

Please don't give up hope --it is a rollercoaster ride to be sure. So difficult to see them go through ALL the stuff. My husband has rolling veins so eventually he had a PICC line which was a God's send.

The fatigue was so hard to see . But he is back to work full time now.

There is not as much going on for pancreatic cancer so we must work through groups like pancan and altho I don't wish PC on anyone, having someone well known like Patrick Swaze(sp) diagnosed has brought more awareness

God Bless you and hang in there we will be praying.

Jan