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Hairy Cell Leukemia Treatment And Nutrition

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Subject: Hairy Cell Leukemia treatment and nutrition
Date: 03/20/2008

My brother was diagnosed with Hairy Cell Leukemia a month ago.  He is undergoing a 6 week treatment.  Once a week for two hours he gets a drip of cladribine.

His spleen is very enlarged...protruding out now.  What can be done about the swelling?  Is there some vitamin, herb or types of nutrition he can take to help? 

We are less than thrilled with the doctor and the cancer center that treats him.  He was supposed to have a 7 day pump for his treatment.  A tube was put into his arm, up and over to just above his heart.  The 7 day pump was put on after he waited 5 hours for the chemo to get to the treatment center.  After wearing the pump for a week...it was removed along with the tube to his heart.  That afternoon we get a call that something went wrong.  We went in the next day and were told that he had been given the wrong dosage.  The nurse had ordered a one day supply, instead of the needed 7 day supply, so, over that week, he only received 1/7th of the dose.  Now he is on the more tradition regimen.  Never were told why he couldn't do the pump again, and got no straight answer when we asked. 

 He was told that he could go to work (as a machinist working with heavy machinery), but his spleen just grew worse after a few days of work.  Does anyone know of a good oncologist and/or cancer treatment center in the Denver Colorado area?  A second opinion and less mistakes might be what we need.

Subject: RE: Hairy Cell Leukemia treatment and nutrition
Date: 03/24/2008
Hi, My husband too was diagnosed with Hairy Cell Leukemia September 2006. We have been doing many alternative treatments (vitamins, akalize vegetarian diet, etc) He is doing fine so far. If you like to communicate with us please email to --Message edited by CancerCompass staff. For personal protection, email address removed. Consider private reply. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html--Sookie

 

On 3/20/2008 gmalou wrote:

My brother was diagnosed with Hairy Cell Leukemia a month ago.  He is undergoing a 6 week treatment.  Once a week for two hours he gets a drip of cladribine.

His spleen is very enlarged...protruding out now.  What can be done about the swelling?  Is there some vitamin, herb or types of nutrition he can take to help? 

We are less than thrilled with the doctor and the cancer center that treats him.  He was supposed to have a 7 day pump for his treatment.  A tube was put into his arm, up and over to just above his heart.  The 7 day pump was put on after he waited 5 hours for the chemo to get to the treatment center.  After wearing the pump for a week...it was removed along with the tube to his heart.  That afternoon we get a call that something went wrong.  We went in the next day and were told that he had been given the wrong dosage.  The nurse had ordered a one day supply, instead of the needed 7 day supply, so, over that week, he only received 1/7th of the dose.  Now he is on the more tradition regimen.  Never were told why he couldn't do the pump again, and got no straight answer when we asked. 

 He was told that he could go to work (as a machinist working with heavy machinery), but his spleen just grew worse after a few days of work.  Does anyone know of a good oncologist and/or cancer treatment center in the Denver Colorado area?  A second opinion and less mistakes might be what we need.


 

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