What Next?

Hello. I am new here and just wanted to say thank you for giving me a place to come and read. I am 20 years old, had leep surgery (she also mentioned a cone was done) in dec.07, cin 3, severe dysplasia. I had a check up after my surgery and my doctor informed me that the surgery did nothing but show that its worse than they thought, the lesions were more severe. The doctor also said something about my glands? Its now almost the end of march and i go back in 2 weeks for another appointment (she said that nothing could be done until i was fully healed from surgery) I'm just wondering what is the next step for surgery's or treatments? Or if anyone has been in the same boat as me. Thanks in advance.

Did you see the actual lab report? Has your doctor recommended a GYN/oncologist? From your description, I think you need to be seen by somebody else. You still have options about what to do, but first get a second opinion.

 

On 3/25/2008 herenow wrote:

Did you see the actual lab report? Has your doctor recommended a GYN/oncologist? From your description, I think you need to be seen by somebody else. You still have options about what to do, but first get a second opinion.

 

thanks for responding. sorry when i said doctor i ment the gyno i have been seeing. i have the lab reports yes, she doesn't explain things all to well so i asked for the to be printed out. she told me not to worry until she saw me again and sent me on my way, so i think your right maybe i should see another gyno. i was just wondering what other surgery's there are?

Your current doctor is definitely not the person for your case. If she knew the endocervical glands were involved when she saw the biopsy results, she should have sent you to a specialist. LEEP may not have been the appropriate method for you, at all. At this point, a specialist can determine how severe it really is and what to do next.

I wanted to add that I am truly sorry you are facing this. Having dealt with dysplasia, I know how frightening it is. It's okay to be upset. But do what is necessary to protect your body and make an appointment with a specialist as soon as possible. Tell the doctor it is urgent.

In case your doctor never discussed the options you have for treating dysplasia, I will list them for you.

There is cryosurgery, which is not the best for more extensive cases of dysplasia. There are also laser and LEEP. For dysplasia that extends into the endocervical canal, there is cold knife cone biopsy, although laser and LEEP can be used. There is also trachelectomy, which removes the whole cervix but leaves the uterus to preserve fertility. Then there is the hysterctomy, which is obviously the most extreme.

I've said it many times, and I'll say it again, but a doctor should show a patient the lab report, discuss in great detail the kind of dysplasia she has and how extensive it is, thoroughly discuss the risks and benefits of all methods for treating dysplasia, and then make a recommendation. The patient's choice should ultimately be respected, but the doctor should do everything possible to make sure the patient makes an informed decision.

I will put out good thoughts for you.

Please, Please, Please....today (not tomorrow) have your OB/GYN make a referral to a GYN/ONC Specialist....seriously.  At this point I've seen 3 different specialists.  In fact when my first biopsies returned abnormal....my very very "on top of it" OB/GYN sent me immediately to a GYN/ONC who performed my CONE and then later instituted chem/rad/brachy, etc.  Believe it or not, some physicians just do not know their own limitations.  This does not make them bad physicians at all....but in the scope of the BIG picture....this is YOUR life.  Please see a specialist asap.  I'm praying for you.

Shannon

On 3/25/2008 herenow wrote:

I wanted to add that I am truly sorry you are facing this. Having dealt with dysplasia, I know how frightening it is. It's okay to be upset. But do what is necessary to protect your body and make an appointment with a specialist as soon as possible. Tell the doctor it is urgent.

In case your doctor never discussed the options you have for treating dysplasia, I will list them for you.

There is cryosurgery, which is not the best for more extensive cases of dysplasia. There are also laser and LEEP. For dysplasia that extends into the endocervical canal, there is cold knife cone biopsy, although laser and LEEP can be used. There is also trachelectomy, which removes the whole cervix but leaves the uterus to preserve fertility. Then there is the hysterctomy, which is obviously the most extreme.

I've said it many times, and I'll say it again, but a doctor should show a patient the lab report, discuss in great detail the kind of dysplasia she has and how extensive it is, thoroughly discuss the risks and benefits of all methods for treating dysplasia, and then make a recommendation. The patient's choice should ultimately be respected, but the doctor should do everything possible to make sure the patient makes an informed decision.

I will put out good thoughts for you.