Mmmt

I have just been diagnosed with this form of rare aggressive cancer and need all the information I can get on it and support from people who have it.  PLEASE respond

HI!

I was diagnosed with MMMT in March 2005.  I have been through radiation and chemo-taxol/carbo and ifos/taxol.  There is another group on Yahoo that is quite supportive and has some people on it who was quite up to date on MMMT.

Where are you located?

  I was dx with uterine carcinosarcoma (MMMT) i 12/06, had TAH, etc   1/07, chemo of taxol/carboplatin 2/07-5/07. 

  I have been very very fortunate to be NED (no evidence of disease) snce 6/07. 

 I urge you to go to the Yahoo message board for MMMT asap, to learn from others what has helped and where to find excellent care, perhaps in your area.

best of luck

et

 

My mother also is suffering from MMMT. Normally MMMT are uterine carcinosarcomas, which is a rarity. My mother has extra-uterine MMMT, which basically means that it has nothing to do with her uterus but she had her hysterectomy done because the doctors first thought that the cancer was in the ovary. The ovaries were absolutely normal. Extra-uterine case is supposed to be even more rarer, which is so ironic. My mother was in remission for a short period between Aug 07 to Jan 08 and now the cancer is back. Infact she now has 3 different tumors in the same area, although there is no metastases, which is amazing. My mother is currently suffering with pain because of the size of the tumors and some fluid retention. Is there anyone  who had recurrence in such a case and was there any treatment protocol that helped you?? Please let me know.