I am sorry I did not see your message before today, but I wanted to tell you about Dr. Kvols in Tampa, florida 813-745-7257 who is an expert in these type tumors. Have you consulted with him yet? I was treated with chemo(cisplatin and etoposide) but they did not do me any good. I went for treatment overseas for the Lu-177 Radioisotope which saved my life. I appreciate your time in responsding.