Carboplatin GBM ???

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Carboplatin GBM ???

by Nickio on Mon Mar 31, 2008 12:00 AM

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I never get any love here...I need some answers! Maybe I don't ask the right questions! I start Carboplatin for my GBM tomorrow and wonder how often I will get it.Might it be a cycle of a certain # of days in between treatment?  I've had radiation, taken Temodar wih Accutane, CCNU, Gliadel Wafers, and now 6 surgical  resections to remove tumor regrowth.  I'm a kindergarten teacher who hopes to return to work in the next few weeks.  Is Carboplatin treatment going to thwart my goal?  I believe it can lower my  resistance to the super snotty runny noses and hacking coughs of 20 5-year-olds.  What can I expect? 

RE: Carboplatin GBM ???

by velcrobaby on Mon Mar 31, 2008 12:00 AM

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I don't know anything about the drug you're asking about but my first thought was the fact that you are in fact exposing yourself to young children who are always either sick or don't practice good hand washing and spread germs as a rule at that age.  Have you discussed this with your doctor? I would be concerned for the exposure to those germs with your immune system suppressed from all the medications??

 Good luck and God Bless!

RE: Carboplatin GBM ???

by jackiekay on Mon Mar 31, 2008 12:00 AM

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On 3/31/2008 Nickio wrote:

I never get any love here...I need some answers! Maybe I don't ask the right questions! I start Carboplatin for my GBM tomorrow and wonder how often I will get it.Might it be a cycle of a certain # of days in between treatment?  I've had radiation, taken Temodar wih Accutane, CCNU, Gliadel Wafers, and now 6 surgical  resections to remove tumor regrowth.  I'm a kindergarten teacher who hopes to return to work in the next few weeks.  Is Carboplatin treatment going to thwart my goal?  I believe it can lower my  resistance to the super snotty runny noses and hacking coughs of 20 5-year-olds.  What can I expect? 
Okay, Nickio, here's some love!  I really admire your spunk trying to get back to work!  I am a 6th grade teacher & I know how much the owners of the super snotty runny noses can take out of you.  You make me feel like a wimp!  I am just the wife of a patient & I've taken a leave from work.  Just couldn't do it all!!  Anyhow, my hubby hasn't taken Carboplatin, he's had radiation and Temodar.  He just had an additional surgery 10 days ago and the surgeon and the oncologist are at odds about future treatment.  Please keep us posted as to how the Carboplatin regimen goes.  My best wishes for your treatment, your health, and your return to work!

 

RE: Carboplatin GBM ???

by mbg53 on Mon Mar 31, 2008 12:00 AM

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Not a lotta love, but a question. Why Carboplatin? I've never used it, but I know one it's most common side effects is myeolsuppression, which surely isn't the best option for a teacher of walking germ factories.  Have they tried the non-chemos (like Avastin)?

RE: Carboplatin GBM ???

by principal on Mon Mar 31, 2008 12:00 AM

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What type of cancer do you have? I used to teach kindergarten for 10 years.

RE: Carboplatin GBM ???

by Nickio on Mon Mar 31, 2008 12:00 AM

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Hello, I've got a brain tumor, A GBM.  I've been so lucky because It's come back 7 times but always operable and on the same side every time.  Its been 3 years and I've had very few side effects so far. 

RE: Carboplatin GBM ???

by Brandoncg on Mon Mar 31, 2008 12:00 AM

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Is carboplantin a clinical trial? If so, with what hospital? I am not familiar, but good luck to you as you begin this treatment.

RE: Carboplatin GBM ???

by Sallysem on Mon Mar 31, 2008 12:00 AM

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My husband started Carboplatin and Avastin for his GBM in December.  He goes for infusions every two weeks.  The first time of the month, it's both the Carbo and Avastin.  The second time is Avastin only.  So, Carbo is given one time a month and Avastin, two times a month.

After Temodar failed for my Dh, we went to MD Anderson in Houston for advice.  This is what the doctor told us to do. 

 My husband saw a good amount of tumor shrinkage in his Feb. MRI.

RE: Carboplatin GBM ???

by Jan42006 on Tue Apr 01, 2008 12:00 AM

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Let us know how you made out with the infusion. I hope you tolerated it well. I don't think it is no love when you don't get answers, just people don't have the particular answers you are looking for... Let us know how it goes...

RE: Carboplatin GBM ???

by Gigi on Wed Apr 02, 2008 12:00 AM

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My husband was put on monthly carboplatin and daiy tarceva since his 3rd surgery last oct 07. He is on his 6th cycle and doing very well. The tumor bed closing in a little and is clinically ok. Blood works still ok. Very minimal deficits. DX 2-05
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