One patient with glioblastoma still alive nine years later
by ejj217 on Fri Apr 04, 2008 12:00 AM
I am a 29 year old otherwise healthy male. I discovered a lump on the right side of my neck, more near my collarbone area. I had it for about 3 months and it never went away or got smaller or bigger, at least that I noticed.
I went to my doctor and got all the tests...blood, x ray, CT Scan.
Blood work is all normal.
CT Scan show three small nodules in my lung area as well as what appeared to be a swollen lymph node.
When to a surgeon and had a needle biopsy done, but once sent to lab, they could not determine anything.
Had an open biopsy done a few days ago and am now waiting on the results.
As far as how I feel, I feel normal, no fever, no night sweats, nothing.
I see my doctor on Mon, 4/7/08.
I've been told it could be Hodgkins, non Hodginks, lymphoma, sarcoidosis...
Any info/help will be great,,,thank you
by texasmom on Fri Apr 04, 2008 12:00 AM
My husband (age 40 when diagnosed in Aug. of 2006) also had lumps on his right side of his neck. They were there for several months then they began to get bigger and increase in number. He started having night sweats and fatigue after that. His Doctor finally realized they were not cysts like we had been told and ordered a needle biopsy.
The needle biopsy was inconclusive, so they also did an open biopsy. The results came back Hodgkins Lymphoma. The cancer was on both sides of his neck, on his sternum and small amount in the abdomen, and under both arms. After chemo and radiation he is in full remission and has been for a year now.
Hopefully, yours will be okay and no cancer, but if so, I hope it all works out for you. You are young so that is a plus!
by artemis on Fri Apr 04, 2008 12:00 AM
You havn't got the results back yet, and i know it's hard not to stress too much but try to distract yourself with other things while waiting - keeping positive is really important.
I know that sound really difficult. My husband and i were back packing around morocco in Jan when we realised that the pain in his side probably meant that the cancer we thought we had 'got rid of' at 25 years old was back at 28. during the wait to get home for tests (to New Zealand via London and Thailand so 26 hours of fying time) we just had to put aside any potential worry otherwise you end up going mad, you can do it! (the cancer is back - in his chest)
If you do have cancer my advice is;
* research, research, research. Know everything you can and question doctors
* Keep healthy, my husband is into martial arts and is on the mat about 15 hours a week - just because you have cancer doesn't mean you have to lie around the house all day - having it when you are young sucks but it does mean that your body is strong!
* eat healthy, take supplements (again research) and drink a lot of healthy water (non-fluride etc)
Hopefully you don't, go out and play some sport or to a movie or something
by ejj217 on Mon Apr 07, 2008 12:00 AM
GOT DIAGNOISED WITH HODGKINS DISEASE TODAY...
Doctor thinks, Stage 2 won't be sure until I see the Oncologist.
Any advice as far as my road ahead and treatment and what to look forward to, would be greatly useful.
by Sheila5 on Tue Apr 08, 2008 12:00 AM
I know just the word cancer sounds so scarey. My husband, age 62 who was dx on July 15, 2007 with CNS Lymphomic Brain Tumor is in remission. He does not have the same type of Lymphoma that you do but the one note I want to pass on is:
After high dose methotrexate treatments (chemo) he is in remission.
Every one reacts differently to chemo. You have youth on your side and there are so many treatments for cancer and their side effects. It is a miracle that medicine has come so far. So remember you will be treated and cured!
Keep the faith and as everyone has told you - keep a positive attitude. That makes the biggest difference. Our family never gave my husband any other choice but to keep going. We make him get up in the morning and get going. Some days it's a struggle for him but he does it.
Talk about your feelings and concerns to friends. Let people in and keep your friends and family close, and especially remember God loves you. He will ride out the storm with you! I will remember you in our prayers.
Lots and Love - God Bless You!
by mattp14 on Sat Apr 19, 2008 12:00 AM
by Hendragirl on Thu May 08, 2008 12:00 AM
What a bummer! We don't want any new people in this club!
At least you know what it is now. I was diagnosed in April 2006, started chemo (ABVD) on 10 May and finished 18 October 2006. My portacath got infected and I was very sick on several occasions. I ended up loosing 15 kg, which have now found me.
The chemo drug I reacted to was Bleomycin - not good for your lungs. But find out what you'll be having, they give you a list and the reactions etc, but get on the web and have a look. One thing I wish is that they had a support group of past and present Hodgkin's patients. I think that would have been valuable.
Everyone has different reactions to chemo, but keep going, sleep lots, drink water and eat whatever you are able to. This is just a speed bump - God's way of telling you to slow down and smell the roses! Also, something else is at the end of it for you. At least that's the way I look at it. I've got too much that I haven't yet experienced.
I know you'll get through this, soldier on and rest.
by zarya on Mon May 12, 2008 12:00 AM
by i544c on Mon May 12, 2008 12:00 AM
my symptoms match the ones you described exactly, only i have two small and painless moveable lumps just above the collar bone. no sweaty nights, itchyness or weight loss, which is why i've been putting it off -hoping it will go away since a week ago when i discovered it.
thank you for posting your experience as it has helped me realize the severity of these symptoms. i'm going to the doctor... and im a little terrified :)
by Jazzy on Mon May 26, 2008 12:00 AM
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