saliva Glands

On 4/8/2008 rick51 wrote:

PSS

1500 milligrams = 1.5 grams (i think).

Thats right I checked it is the same I guess I should up his daily dose? What is Resurgex? Is it something we should know about?

Thanks so much for all the help! I feel like we have been climbing up a steep steep rollercoaster hill and are about to go over the other side and have no idea what lies ahead   Yippes!

Be Blessed

Donna

I had treatment for tonsil cancer in 2004 at Spartanburg SC regional medical center.  They may refer you to Gibbs Cancer Center.  When I began radiation I also started on shots that made me sicker than a dog.  The chances of them protecting my saliva glands were 20% so I stopped.  The hospital could tell you what the shots were, I don't remember.  Post cancer I am on one of two medications for saliva.  Evoxac or Saligen.  For me Evoxac works better.

Had the cancer spread before it was found.  If not, what symptoms led to the discovery of cancer?  My lymph nodes were swollen. 

Resurgex is a brand of protein drink. You can google them to find where to buy. It has less sugar than most. I actually could taste it all the way through treatment and it takes pretty darn good. They have strawberry, vanilla and chocolate flavors. More vitamins than drinks like ensure.

Hang in there.

God bless.

R

I would be very careful with the amifostine shots.  My husband had the shots for the first week of treatment but then had a VERY bad reaction to them.  He broke out in a rash that covered his body, became very ill and ran a very high fever (all of this started within 45min. of the shot).  That night we called the doctors office 5 or 6 times and almost took him to the ER.  He really thought he was going to die that night. 

After that, the doc took him off the shots, but after 35 radiation treatments and chemo, he has no problem with his saliva, and the radiation was to both sides of his neck. Glutamine powder was something he used, and we both agree that it made a difference in his level saliva.  My husband can taste everything and no longer needs to carry a bottle of water.

- Amy

My husband had the same rxn to the shot. He started by getting a rash at the site of the injections and then, by the 39th shot, his eyes were "ringed" and the stopped the shots for the remaining rad treatments. Quickly the few areas of rash turned into a full body rash rxn and he spent two months on steroids to clear it up.

Our radiologist told us that this sort of rxn is not common but it was still scary.  

I was treated with Salagen (tablet.) I don't know if it made a difference, but 5 months after the end of radiation treatment my saliva production is much better than at the end of the treatment.

When I asked about amophostine (ethyol) injections, my doctors told me that the original manufacturer-administered trial produced promising results, but additional, independent trials did not confirm them.