Diagnosed With Poems Today

I have had symptoms of POEMS for several years and no doctor has every been able to figure out what was wrong with me.  Finally after a month and a half my new neurologist diagnosed me with POEMS.  I do have all 5 of the categories.  I was concerned about this being passed on to my children.  She said this is not hereditary.  I am going to see a neurosurgeon on Thursday to see about a lesion that is in going into my spinal cord.  Has stem cell transplants been successful for anyone?  Is mayo the only place doing research on POEMS?  Is anyone have a research studies on it?

Are you still seeking information regarding the treatment of POEM's?

My husband had a successful stem cell transplant in August 2006 and I would be happy to share "our" experience with you.   Just let me know.

Yes!  I tried recently to get a tumor out of my spine and it got cancelled before I went into the OR.  My sugar readings were to high.  I have not been able to control my diabetes for a couple of years.  I am wondering if I can get stem cell treatments with my diabetes unable to be under control.  In the past few month I have lost about 80 pounds and it has made no difference with my poems or diabetes.  I would like any help or suggestions. Thank you.