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15 Visits To Pediatrician In 6 Mo Before Dx.

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Subject: 15 Visits to Pediatrician in 6 mo Before Dx.
Date: 06/19/2005
My 16 yr. old son was diagnosed with Nodular sclerosing Hodgkin’s Lymphoma Stage 4B. Night sweats 60 lb. weight loss swollen neck glands loss of appetite. I knew something was wrong, I just knew it but he suffered for 6 months with "he has mono what do you expect". I knew something was wrong I could not get any one to listen especially my ex. I was painted as the crazy mother who was MAKING my son sick by dragging him back to the doctor constantly. Finally saw an orthopedic MD due to his complaint about leg pain and he took one look at him and said "get him back to your ped. MD tomorrow stat he was very concerned but did not say the cancer word to me. I feel guilty that I was not pushier with the MD. My ex- husband did not support me in my endeavor to find out what was wrong with my son. I will never forgive him for that. Now my darling boy has suffered 5 inpatient courses of chemo 8 days at a time due to Bleomycin reactions. Soon to start 9 weeks of daily radiation to neck chest abdomen and coccyx/hip area. I only have one son, I will never be a grand mother I am sad angry and want someone to pay for my and my sons suffering. I feel guilty that if it was caught sooner that he wouldn’t have to suffer the more aggressive therapy he is enduring now. Because we are middle class we have been turned down by Medicaid, SSI disability for my son in spite of the fact he has worked as a cashier for 3 years to buy his own car. We have to lose everything before qualifying. If I was to sneak over the boarder this treatment would be on Uncle Sam. Anyone feel this way too I am so angry. Thank you for letting me vent because being right is no comfort.
Subject: Re:
Date: 08/24/2005
I was in much the same situation a little more than a year ago. I
went to my ped. multiple times and never was diagnosed. When I
was diagnosed I was stage 4b as well. I was also 16 at the time.

-Alex
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