response from Ewings survivor with radius bone

I am a twenty year old male who is in treatment for Ewings sarcoma that affected my right forearm below my elbow.  Besides pre-surgery chemo and radiation, surgery (where 5' of bone was removed from radius) I have continued post surgery chemo and radiation as well.  I go to physical therapy so that I will have some use of my arm and hand.

The surgery involved the remainder of my radius beng fused to the ulnar bone with three screws so I am unable to move my wrist, although I do have movement of fingers.  I am interested in talking with someone who's also had Ewings sarcoma in the forearm and similar surgery and treatment.  I have many questions regarding pain management, how long the protective mold is used, etc.

Thankyou,

novembertwenythree 

Hi there

While I cannot exactly match your diagnosis, my daughter had Ewings Sarcoma in her humerous bone, so close but not a perfect match. Her surgery involved 9 inches of bone removed, and she too was put together with screws, etc. (Kind of like she came home from Home Depot) The surgery was long, and the physical therapy was long also-I wont lie. She says is was quite painful but managed to wean herself off of the pain meds. Her arm now has a beautiful scar but she can do almost anything. Her surgeon says she has no physical limitations, but I can see that she doesnt have full range of motion. She is now 2.9 years in remission (she goes in for x-rays again on the 23rd of April.) Shes happy, healthy and 20 years old, attending Colorado State University. I am sure she would be happy to talk with you at anytime! Best wishes..Hang in there! 

Carol