Hi -- My husband (39) was diagnosed with a Grade IV pontine glioma in January. I'm interested in corresponding with other caregivers and/or patients who are dealing with adult brain stem tumors. Most of the information I find is related to children.
Steve finished radiation and Temodar in mid-March. He begins the next round of Temodar on Monday (7 on, 7 off). He'll also begin Accutane (21 on, 7 off).
Thanks.