On 4/11/2008 trulyblue wrote:
I was recently referred to an gyn/onc for dysplasia of the vagina and vulva. I also have been diagnosed with lichen sclerosis. The oncologist prescribed Effudex to be used twice a week. After 3 treatments, the pain was horrible. The burning everytime I urinated made me shake. I waited for 10 days until my next appointment before doing another treatment. I was told I had lots of redness still from the treatments, to wait another 2 weeks before continuing treatments, and prescribed lidocaine to help with the pain and itching. I would be interested in hearing from anyone else who has undergone this type of treatment. I just never dreamed it would be so painful.
I have had 3rd degree burns and blisters from my 5FU trreatments. My course of treatment has been 7 days on, 3 weeks off, pap/colposcopy, then repeat. I need to get 3 paps in a row to be "clear" and stop treatments. Typically takes from 6 to 18 months. As for the burns and soreness, my oncologist has recommended using Deisitin (diaper rash ointment) on the external portions to act as a barrier should any cream spill over. For the burn and pain itself, I use a lidocaine gel (prescribed from my dr) to numb the area, makes using the bathroom soooooo much easier. Ice also helps greatly! I know how painful it is, I've had othe rsurgeries in my life and babies and NOTHING has been as painful as this. But, hang in there, if I can do it, so can YOU!!!!!! God Luck - cupfull of hope