Haven't Posted In A Bit

It's been a while since i posted. Well it seems like a while but I guess in reality it's only been like 2 weeks.

So back at the end of March I had written about my dad needing surgery to have a shunt put in. Well he had the surgery and now he is doing great. He is still in the hospital though. We are waiting to get him into a residence. The way he is right now we can take care of him but we know this will not last forever and we need help. Esspecially since his primary caregiver up until this point has recently been diagnosed with early stage breast cancer. ARGH when will it end.

He seems content at the hospital though, mind you I think he is getting rather bored now. We need to find him a hobby, though his vision is problematic now so it makes it difficult.

Anyway that is my update. All is well right now.

Renee

Father, Claude dx Oct/07 GBM completed 2 cycle of 5/23 temodal now treatment on hold.

Hi,

I am glad the shunt surgery went OK and hope you have good quality of life for a long time.  I reread your post from a while back, and it sounded like you were probably still having success from whatever chemo he was on..are you continuing?

Melissa

Hi Renee -- I'm glad you posted an update, I wondered what was happening with you and your dad.  I'm glad the surgery went well and your dad is doing OK.   How soon before they restart the Temodar?  How are you doing?

I'm sure life just got a bit tougher with your dad's caregiver getting a cancer diagnosis too.  Life just doesn't seem fair sometimes does it.

Take care of yourself.

Nancy

**husband, dx 8/07 GBM, surgery, IMRT radiation/Temodar, currently on 5th cycle of 5/23 Temodar , MRI's good so far

Actually I am really not sure what is going on. He thinks he is fine and there is nothing going on...you know that he is all better. He thinks he is done his chemo and everything and is pretty happy with that idea. I don't think he realizes the cancer is still there. I had said to him maybe a week after the surgery that the chemo is just on hold because he is in the hospital right now and he said I was a complete idiot and didn't know what I was talking about haha I can find some humor in it right now. I just do not know!! Do we continue or do we just let things run their course? What's the point? Well I know what the point is but hopefully you know what I mean. I want my dad to be better but even if the cancer were to go away how would he be...is the way he is now as good as he will get? Has the damage to his brain already been done??? Ultimately it will come back right?!?!?! And then what start again? Go through this all again?!?! ARGH!!!!

I'm having a rough time with all of this right now. Well I am better then I was a few weeks ago but still tough. I just want it to be over...good or bad...I want things back to the way they were before cancer...before things got hard...I know that will never happen :( I just want things to be easier!!!! I wish I had a suitable place that dad could come stay with me. If I could afford to buy a house with one level I would right now!!! I wish I had a better vehicle dad can't get in and out of my car so I can't really take him anywhere. I wish he wasn't cooped up in the hospital but I can't do it alone and his girlfriend sure as hell can't do it now either!! I wish I was super woman! I can't do it all and I am one of those god forsaken people who do not function well on less then 8 hours sleep. I am so tired all the time :( not that it matters cuz even when I get 8 hours its not restful so it don't make much difference I guess. I think I am babbling again. I guess I am just frustrated!!

Renee

Hang in there! We are praying for you. God bless.

Chris