Seizures

My father had seizures this past November, about 11 mos. after his first surgery. It caused visual and auditory hallucinations for him, but anti-seizure medicine seems to have it pretty much under control. His tumor growth is back, though, so it remains to be seen whether the seizures will stay controlled.

Have you had seizures?

I believe seizure can happen any time, regardless of medications. Beware.

Chris 

My son has GBM and seizures for almost 5 years. He was never well controlled. After surgery for biopsy his seizures disappeared. We figured out that it must be the Decadron has been effective to control it. Although steroids have side effects, we are planning to keep him on . At least he gets some quality of life. A friend of mine, Cindy, has a similar situation. Child with GBM, severe seizures with airway restriction. She took the same approach and seizures are so far more controlled.

Good luck,

Shevy

On 4/14/2008 Hyacinths wrote:

My father had seizures this past November, about 11 mos. after his first surgery. It caused visual and auditory hallucinations for him, but anti-seizure medicine seems to have it pretty much under control. His tumor growth is back, though, so it remains to be seen whether the seizures will stay controlled.

Have you had seizures?

YES!!!!!!!!!!That's how it all started.