Gbm Iv

There have been some studies that suggest that a subgroup of patients with malignant gliomas respond or stabilize with chronic high-dose tamoxifen therapy ( 80mg/m2) . This therapy may represent an alternative or adjuvant to existing chemotherapies for these tumors but more studies are needed.  It may be worth a try.

What does "stabalize" mean?  How is your loved one differnet "now" as opposed to when diagnosed?

Best of luck,

Joann 

On 4/15/2008 Bunkydarl wrote:

What does "stabalize" mean?  How is your loved one differnet "now" as opposed to when diagnosed?

Best of luck,

Joann 

 

He is back to work, still minor balance issues but otherwise seems to be doing okay other than when he is undergoing or just after treatment - suffers from fatigue.  We had no idea the tumor was there - fell on the school bus and hit his head causing the brain to swell, then had a seizure and the tumor was discovered. 

My wife went through essentially the same treatment course.  They completed the PET and then put her on the tamoxifin for a year.  Things were fine for that time period and she enjoyed her 12 months chemo-free.  Unfortunately the tumor has come back and we have started another treatment. 

On 4/16/2008 Ken s wrote:

My wife went through essentially the same treatment course.  They completed the PET and then put her on the tamoxifin for a year.  Things were fine for that time period and she enjoyed her 12 months chemo-free.  Unfortunately the tumor has come back and we have started another treatment.