Hi,
I am new to this website and message board. I was very happy to stumble upon this website when I was researching Granulosa Cell Tumors. It is very hard to find information about them and it was good to read other peoples experiences with it.
I am 50 years old and about a month ago after having an ultrasound done because of abnormal bleeding I was told I had a 12 CM worriesome mass on my ovary. I met with a GYN Oncologists who advised me that I have a total Hysterectomy. I had surgery about 3wks ago and they removed the tumor, uterus, ovary's, fallopian tubes cervix and surrounding Lymph Nodes. The Pathology report came back showing I had a Granulosa Cell Tumor (a very rare form of Ovarian Cancer) It was cancerous but luckily had not spread. It did rupture during removal so they classified it as a stage 1C. My Oncologists feels there is no need for Chemo. He says this is such a rare Cancer that there are not a lot of studies that show if Chemo helps or not. He is going to monitor me with regular blood tests for Inhibin levels and CT scans for the next 5yrs. I am releived I do not have to have Chemo but I can not shake the scared worrisome feeling that it could come back. It shakes me up that I actually had Cancer. I guess emotionally it is hard to except. It scared me to read the emails from people who had it come back. Anyway I am going to be checking in on this site often for more information.
Thank you! Patti
Any input from anyone would be great.