Glioblastoma @42

Wow,

What can a spouse say or do when your healthy husband finds out that he has this horrible cancer?

As a supportiave spouse what can you do that can ever be enough?

Even if their doing fine, you feel so helpless?

On 4/21/2008 sandram wrote:

Wow,

What can a spouse say or do when your healthy husband finds out that he has this horrible cancer?

As a supportiave spouse what can you do that can ever be enough?

Even if their doing fine, you feel so helpless?

I am so sorry to hear about your troubles. my son who is 38 has a glioblastoma. They removed 99% of the tumor, he did radiation & chemo for 6 months. Has to do the chemo for another year. all you can do is be positive about the cancer, I know how hard that is believe me, try to keep there spirits up best you can. It is not a death sentence necessarily. Miracles happen everyday. his post is under brain cancer, this is actually his second bout with cancer. If you can find it, there are alot of eople there with the same thing, they can give you support. I cry my eyes out every night for my son, but he doesnt know that. take care, best of luck, you will be in my prayers.

Linda

Wow, I know it's so hard and I can't imagine it being my child.

Like you cry for hours in a closed room  not wanting anyone to know how much it hurts, not knowing what to do.  I've tried to talk to friends but when they find out what it is, they avoid the subject.  No one knows how to deal with it.  I live in a small southern town in Arkansas and no has hardly heard of it until they start looking it up on the internet. Then like me there overwhelmed.

My prayers and thoughts are with you!

On 4/21/2008 sandram wrote:

Wow, I know it's so hard and I can't imagine it being my child.

Like you cry for hours in a closed room  not wanting anyone to know how much it hurts, not knowing what to do.  I've tried to talk to friends but when they find out what it is, they avoid the subject.  No one knows how to deal with it.  I live in a small southern town in Arkansas and no has hardly heard of it until they start looking it up on the internet. Then like me there overwhelmed.

My prayers and thoughts are with you

My husband had GBM. Unfortunately he did lose his fight but he had quality of life. Please realize that people do make it. You can  go to  www.jerrykline.com. He is a four year survivor.

I cried alot too. But I also kept our life as normal as possible. It is overwhelming, but somehow we find the inner strength to keep going everyday.

My husband was from a small southern town in Arkansas but we lived here is Califronia. Are you going to Little Rock for treatment?

 I want to encourage you to not lose hope and to be as involved as possible in all treatments. Stay strong and cry when you need to, but this is not a death sentence.

Diane

We are using UAMS, I think we should go somewhere else to at least see if we're doing the right thing.  We had surgery in December however they were not able to remove all of it due to the location.  We had 6 weeks of radiation and now on the second round of Temdor.  The turmor is the same size after surgery.  He's been amazing and still able to work.

I appreciate your support!

Diane,

We're going to Little Rock to UAMS.  I get so flustrated we've only seen the oncologist once since January, every time we go we have to see an intern. 

How long did your husband have to battle this?  We really can't get an answer on anything other than their doing the standard protcol of care.

The tumor was taken out in December of 07, they were not able to remove it all because of location and it's still the same size today as it was after surgery.

On 4/21/2008 sandram wrote:

Wow,

What can a spouse say or do when your healthy husband finds out that he has this horrible cancer?

As a supportiave spouse what can you do that can ever be enough?

Even if their doing fine, you feel so helpless?

My son found a cancer suport group where he lives through the american cancer society. If you call them & go to the meetings, they can help alot. wonderful people there that know what you are going through. If you cant go, they also have phone support. Please try & do this, it made him feel so much better, finallly talking to people who really know how he feels & what he is going through.

Linda