One patient with glioblastoma still alive nine years later
by reyze on Sat Apr 26, 2008 12:00 AM
I was diagnosed with breast cancer in February 2006, I began chemo (doxorubican, 5FU and taxotere) in March 2006 and had my last treatment in July 2006. I only have a few sparse hairs on my head and my hair has not regrown. I don't understand this since I had very very thick curly hair. I have used Nioxin and am now using Rogaine in an attempt to get hair. My body hair, eyebrows and eyelashes only have sparse hair also. Do you have any suggestions or help?
I miss my hair. Please help.
by Lovemysquirrels on Sat Apr 26, 2008 12:00 AM
by donnalynn on Sun Apr 27, 2008 12:00 AM
by reyze on Sun Apr 27, 2008 12:00 AM
On 4/27/2008 donnalynn wrote:I too am having somewhat of the same problem. I had long thick hair prior to chemo and now it has grown back but the top is very thin and see-through. I am wondering if it has anything to do with the Arimidex that I am now taking. Are you taking anything now?
I take 20mg of tamoxifen everyday.
by Lovemysquirrels on Mon Apr 28, 2008 12:00 AM
by ojan123 on Wed Jul 06, 2011 06:36 PM
I am five years post chemo, radiation, and tamoxifen 2 years, and arimadex 3years finishing this October, My hair has grown back nothing like it was prior to treatment, I wear a wig all the time. Suffering from sparse hair growth on top. I also had my ovaries removed too. I also have hypothyroidism so am very sad to think this will not change even post Arimadex. Anybody else in this way? Is there still hope for me ?
by earlie on Thu Jul 07, 2011 12:19 AM
I didn't have the problem with my hair not growing back but I did lose my eyelashes which my oncologist prescribed latisse now I have them back but have to continue using it occasssionally or they start falling out.I also had very long thick but frizzy hair but it came back thick and natural curl which I love.For quite awhile I had one bald spot on the top of my head but everywhere else was thick.It eventually filled in.I will hope and pray for your hair to return.I sure wish the hair on my legs wouldn't have came back though.It was nice not having to shave.To be real honest it didn't bother me all that much being bald headed saved alot of time in the mornings.HA !Got to have a little laughter.People who love you accept you no matter how you look,hair no hair.Those that don't,they just don't understand.If you know God,he will take care of you and things will happen in his time.
May God always guide and protect you.
by deezin on Sun Jul 10, 2011 01:19 AM
I am so sorry you have a probelm of hair growing back I have known a few woman that this happened too from breast cancer support group I go to. Mine grew back very thick & curly which I do love so easy to wash & go. I also had thick hair but it was straight I also heard that alot get their natural hair back after awhile. it has been1 yr. and still all curly. I am also on Arimidex and not finding that it is thinning at all but I did read that this can happen.
by imissmyhair on Thu Dec 29, 2011 10:30 PM
On Apr 26, 2008 12:00 AM reyze wrote: I was diagnosed with breast cancer in February 2006, I began chemo (doxorubican, 5FU and taxotere) in March 2006 and had my last treatment in July 2006. I only have a few sparse hairs on my head and my hair has not regrown. I don't understand this since I had very very thick curly hair. I have used Nioxin and am now using Rogaine in an attempt to get hair. My body hair, eyebrows and eyelashes only have sparse hair also. Do you have any suggestions or help?I miss my hair. Please help.
On Apr 26, 2008 12:00 AM reyze wrote:
Hi Reyze, Well I am one of the few where my hair did not grow back from chemo. I was diagnosed in 10/2006, had 6 rounds of chemo, last chemo was 4/2006 then had 6 weeks of radiation. I do not and never did take post chemo meds. I only have a little fuzz on my head. You can see staight thru it and you can see my scalp. I have been to several Docs and none can explain why my hair did not grow back. They say it is male pattern baldness and the baldness probably would have happened in time. I am not a doctor but i totally disagree. I believe that is just a generic answer that they always tell people when they do not have an answer. My brothers are balding but my sisters are not bald. If that is the case, why hasn't the hair on the rest of my body not grown..arms, eye brow and legs...I have hair there but it is barely there. (I got my eye brows tattooed) I used to be rather hairy. In search of my own remedy I have tried several different things that did not work. I tried the Nioxin, that didn't work, I went extreme and tried a tattoo on my head so that it would not look shiny...well the tattoo did not take so i decided not to go that route. I am not sure if you have heard about the laser treatments but I have tried that and the jury is still out on that. I did see some improvement but not much. I am thinking of doing the laser treatment again...originally i did it for about 6 months. it is kinda pricey. It cost $200 a month for 2 to 3 times a week 30 min sessions. Its like 25 dollars a session. There is absolutely no pain associated with it - you just sit there like sitting under a hair dryer but instead of air there are these red rays shooting out of the hood. I never tried Rogaine because if you stop using it your hair will fall out.
For those people whose hair grew back in any fashion...I mean any fashion, grey, curly, straight, not as long as it once was, be thankful...you could be like me without any.
I am hoping Reyze and I can get some dialogue from people similar to our situation...suggestions, comments, solutions...
Reyze, it's been a while since you have posted anything. Have you found anything that works yet?
by ojan123 on Sat Dec 31, 2011 02:37 AM
Hi All, I am another breast cancer survivor who has had trouble with hair growing back. Diagnosed in 2006 and after 4 and a half months of TAC, and 5 weeks of radiation, and 2years of tamoxifen, then ovaries removed prophylactically and placed on aromasin for remaining 3 years. Just finished in October 2011, but my hair is still sparse on top, and very grey. So I definantly can relate to those of you out there with the same issue...my doctor thought once I had completed the aromasin I might see a change, but there is no difference. Are any of you out there also hypothyroid, because I think that also might have a contributing factor. I think wigs will be my best friends now, because nothing else seems to be working. If anyone finds an answer out there let us know. Take care All.
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