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Essential Thrombocytosis And Pain

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Callalilly2
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Subject: Essential Thrombocytosis and Pain
Date: 04/27/2008

Hello everyone!  I am hoping to find some serious support- kind of feeling alone right now.....I have been through the death of my grandmother from stomach cancer three years ago, my mother in November (just seven days shy of my 36th birthday due to breast cancer) and now this month, the death of my Uncle (mother's brother) due to neurofibromatosis.  A bit much to deal with emotionally....

 At any rate, I am wondering if there is anyone else out there who experiences bone discomfort with ET.  It's not an actual pain, just more of a discomfort...sometimes I feel like my legs are being weighed down.  Given what has happened with my family hx of cancer, I am trying to avoid being negative, but it gets hard to maintain a positive attitude at times, especially when I hear people tell me that it's not good that I am experiencing some discomfort.  I did some research online a few days ago, and I noticed that there are some homeopathic meds that claim to treat ET, but admittedly, I am too much of a skeptic to consider that form of therapy.  Any responses to my post would be greatly appreciated.

Even though I recently joined an MPD support group in my area (IL), no meetings have actually occured, and I just want to reach out and start connecting with others who have ET. 

 Thanks and the best of health to everyone!

 

Dana

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