One patient with glioblastoma still alive nine years later
by Donnamswa on Wed Apr 30, 2008 12:00 AM
Hi Cancer support famiy,
Has anyone expierianced hair loss with cisplatin? We were told by the docs that he wouldn't loose his hair and while rubbing his head tonight I noticed it is falling out. This is a surprise, but what isn't at this 3 week mark?
Thanks for the feedback
by Chrismd on Wed Apr 30, 2008 12:00 AM
I do not believe Cisplatin typically causes hair loss. However, radiation therapy does. I lost lots of beard hair as well as hair from the back of my head during radiation treatments. Much of it has grown back, although it is thinner than before treatment.
by Aviatorrandy on Thu May 01, 2008 12:00 AM
cisplatin does cause hair loss
it will grow back
by DeniseB on Fri May 02, 2008 12:00 AM
It could be dose related on the hair loss. Larry will have "low dose" Cisplatin. We are told he would not lose hair except at the radiation site--neck, beard, lower neck hairline.
by Girlcat36 on Sun May 04, 2008 12:00 AM
I became bald at the bottom half of the back of my head from the radiation.
Cisplatin DOES cause hairloss, but not complete baldness! I lost about half the volume of my remaining hair. Nearly a year out from TX all is growing back in just fine.
by Donnamswa on Sun May 04, 2008 12:00 AM
by kristinamich on Sat May 17, 2008 12:00 AM
by scootie45 on Thu Jun 05, 2008 12:00 AM
My husband lost his hair with Cisplatin and radiation for snuc as well. His hair was getting thin anyway, but started coming out in bunches by the around the 3rd week after starting Cisplatin. He has also lost the hair on the right side of his face and upper lip from radiation. Amonth and a half after his last chemo/radiation his hair is coming back in- was very light at first but getting darker. It is pretty thin though.
A small price to pay for all the other side effects that go with the chemo/radiation- nausea, mouth sores, feeding tube, fatigue, etc.
It's hard to watch :-(
by BinaryBiker on Mon Mar 23, 2009 12:00 AM
I have squamous cell carcinoma with a left tonsil primary. Head andneck cancer, for short. Stage 3 - spread to my lymph nodes.
I just successfully completed 3 rounds of cisplatin chemotherapy and 7weeks of radiation. As others have mentioned on this thread - the radiationdoes cause hair loss. My goatee and facial hair completely fell out.
Cisplatin also causes hair loss - but not the patchy kind where youhave random baldness around the scalp. No - my hair thinned out to thepoint where I now have less than half the total number of hairs on my head as Idid to begin with. For me, this is quite a difference as I am a"long-haired hippy motorcycle rider."
I finished treatments on Jan 15th of this year and it's now March 23rd. Myhair is still thinning. Every morning when I shower I clog thedrain. When I run a brush through my hair I have to immediately clean itfrom all the dead hair that has clogged the brish.
My hair is everywhere. On my clothes. It sheds in my food as Ieat. It is on the floor. I feel like I shed worse than my beagle.I'm constantly picking my stray hairs off of my fiancé’s shirt or from thepillows in the bed.
Cislplatin most definitely causes hair loss.
I think I have reached my limit. I am getting married in 7 months andwhat to have SOME hair. I already see some stubble at the base of myscalp where the hairs have been lost. So, I am going to shave my headcompletely bald this weekend and let it all grow back in evenly.
I'm either going to cut the hair for charity - for children's cancer forinstance, or make it a family spectacle and let the kids and nieces and nephewsall take a turn at buzzing my scalp with the clippers. It's important tomake the kids a part of your journey.
Anyway - to all cancer patients and survivors reading this andstressing about the side effects of chemo and radiation; good luck. Thistoo, as they say, shall pass. It's not an easy journey; but you can doit.
If it helps to see how someone else dealt with the journey from finding outhe had cancer the first time through treatment and beyond, feel free to read myblog where I detail my cancer journey: http://binarybiker.blogspot.com/search/label/Cancer .
by tamesa on Wed Apr 24, 2013 10:34 PM
Wow! I have tonsil cancer that has spread to my lymph nodes also, and am starting 7 wks of daily radiation and 3 rounds of chemo with 100 mil. of cisplatin, along with nausea meds. I will also have a peg tube next week. I am very interested in you blog since it looks like our diagnosis and treatments are identical. Thanks!!
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