We my husband and I are half-way through our journey of hell (as far as the treatments go anyways). Made it through three weeks and three more weeks to go, though I am nervous as he starts his double radiation days next Thursday.
He is miserable, his mouth is full of sores and his tounge looks like a big red popsisicle in his mouth and his lips definately dont look like his, they look like they belong on a monkey. Besides that we are hanging in there, he still isnt using the feeding tube to eat only to take his hydrocodone because it burns his mouth. I really think he is trying to wait as long as possible as far as using it for food.
The good news is that I can hardly see the tumor anymore, really only when he looks straight up at the ceiling elongating his neck can I see a MUCH smaller lump. That gives me hope that it will all be gone over the next 3 weeks especially once he starts the double fry.
Hope everyone else is doing good, TGIF!!
Brandi