One patient with glioblastoma still alive nine years later
by rosaflor on Mon Jul 19, 2010 03:04 AM
Our Hospice nurses told me that people usually die about two weeks after they stop eating and that not wanting to eat shows that the body is shutting down and metabolism is changing. They said not to urge him (my husband) to eat but to offer light food and liquids only if he wants them. In my experience so far this means he might drink about 1/4 glass of milk or half a cup of broth and just that little bit triggers violent diarrhea (with incontinence) so the body doesn't seem interested in digesting anything. I can see the life processes shutting down and he is so so so tired.
by elain on Thu Dec 09, 2010 03:47 AM
My husband has lung cancer and his appetite has been non-existant for the last few months but up until recently he was able to manage rice pudding (home made), a small bowl of soup but now he gets nauseated just looking at them! If I cook anything the smell of it cooking makes him nauseous. He will manage a Boost or Ensure but won't have one every day; I make them with fruit, yogurts and even ice cream! He has lost a LOT of weight this past 4 weeks and I am at a loss foodwise now. I will add when he was first diagnosed he was given 2 to 6 months - that was almost 2 years ago I am happy to say, but now things are happening quickly. One thing he will drink occasionly is Carnation Instant Breakfast and it has some nourishment. After reading your letter I realize this is part of the upcoming process of his life coming to the end. He isn't the least bit depressed, always smiles but he is SOOO thin!
by madlisee on Tue Feb 01, 2011 10:44 PM
I realize this is an older post but wanted to put some better information. Patients in active dying can go usually 1-2 weeks with food or water. It takes little to no food or water to sustain them and the body will cannibalize existing fluids in the tissues. Our hospice nurse the longest she had seen was 32 days because all that was functioning was heart and lungs. My father in law is in hospice now, on day 12 with no food or water. Hospice will not administer IV's because it will flood the lungs and cause death faster, food causes cramping in the bowels and a lot of pain. He's not starving, he just sleeps deeper and longer every day.
by stu46 on Tue Feb 01, 2011 11:53 PM
Hi. do not give him milk or milk products, if the broth contains fat dont give him that either, I am prone to IBS so I know what irritates the intestines/bowel.
Try thin oatmeal porridge (water no milk) with honey, and maybe a glass of hot water with two teaspoons of honey and 3/4 teaspoon cinnamon, if he can drink that add a little lemon juice, perhaps thin tomatoe soup, try different things but avoid milk and fats
by KaylainTx on Wed Feb 02, 2011 09:40 PM
my brother was in a coma (traumatic brain injury) when he passed away. He went 8 1/2 days without any IV's or nutritional support.
If you start seeing purplish red streaks up the legs and arms, that's a sign that death is near.
Can you call hospice?? There is so much they can do to make him comfortable.
I'm very sorry for your family. Will say a prayer for him (and you)
by cincomas on Mon Jun 06, 2011 11:06 PM
Unfortunatey my Mom is dying from pancreatic cancer. She was diagnosed 7-17-10. She stopped eating 19 days ago. Hospice comes everyday...and for the last 7 days they prepared me for her to pass in 24 hours. Her BP is 140/60, still has urine output and daily BM's. She is strong like Mule...but i have to admit i am sooooo tired.
by lifefan on Thu May 24, 2012 12:57 PM
We received my mother-in-law's diagnosis of stage 4b pancreatic cancer on 27 April; doctors said either 1-3 months or maybe 3-6. Yesterday hospice said we were transitioning to hours or days.
We're struggling through this, and not experts -- but we've had hospice help (guidance and support) for 4 weeks now. You do the best you can -- getting hospice help right away was a really good decision. They are great professionals - caring - and their humanity is just amazing.
I googled to find out what happens when someone stops drinking -- brought me to this site -- drinking fluids stopped 40 hours ago for us, BP 80/65 (shouldnt be equal or close to equal), rattled breathing. Not waking anymore, but pain seems to be managed through meds. She's a tough lady -- hospice is great.
by rovers2001 on Wed Jul 03, 2013 08:25 PM
by upvan on Sat Jul 19, 2014 04:46 PM
I am sorry for everyone's loss. I can feel so deeply how painful is it to loss your beloved ones. I lost my mother right 1 month back at the age of 56.
I am still not out of the shock and pain I am suffering from. As me and my family members did everything they could to save her. I have been to every religion for every prayers they use to have to save my mom's life. She wanted to live happily to see us happy atleast some more time.
Sometimes I curse myself and sometime I curse doctors as I doubt they treated her in wrong direction. But, I am left with no strength to ask for anything happened wrong when I have lost my God my mom.
I still calculate sometimes what went wrong and where we got wrong.
My heart says just leave it and fck everything happening out and wait for your own time to end but my mind says use this time to save your other beloved and yourself to help some other needy.
I have come to say that after an age of 55+ pateints must avoid big operations, as their state of tolerating the operation is so weak. So there are minimal chances of recovering. But doctors do their business as they know the tricks to even earn from a dead body for few more days. We are a big sufferer for losing everything.
As a big tip, please ask your beloved ones to stay healthy and keep exercising, meditating, eating healthy food, avoiding pills (as they are a way to hospital either ways).
I think we all know whats good for our health so keep following that and help others to make a healthy environment all around.
Good luck for the life you have left to help yourself and others. Keep using it more better.
by vwxyz on Thu Aug 14, 2014 11:58 AM
ausgand, That is the way I wanted for my son Jeff to survive his last days. They did not care enough to suction out fluids ahead of time. His vital signs were supposedly stable. The night before he woke up with burning ach in his right leg and the next morning he complained of pain in his head and nose area. Blood was coming out of his nostril that did not have the ng tube. I told the nurses many times he was not feeling well and they said no, he was scheduled to go for a gtube today and that was set in stone and they do this with many people in this weakened state. He was on I.V. fluids for 10 days and then a stomach gtube procedure was done just before he died after.
The room was filled with people wall to wall trying to save his life. It ended up with them probably CPRing his pic line into his heart. I have not had an autopsy and am still tossing back and forth whether to just honor my sons body as is or have an autopsy done to see what did it. The DR. in charge of the floor wants an autopsy done.
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