I am so sorry for what your family is going through. Everything you have mentioned my dad also went through. My dad had the whipple 6 years ago and was in the hospital for 47 days. He has never been the same since. He is weak, tired, quiet, moody, food tastes terrible....etc. We have been trying to find someone to help our situation for years. Finally today my parents met with the surgen who preformed the surgery. He seems to be the last hope. My dad goes to the VA hospital in Sturgis, SD and it seems like nobody gives us any help. It's just like we are treated as though we are needlessly complaining. Until you or a family member goes through the whipple you have NO IDEA how horrible it can be. My dad went into the hospital a vibrant, happy, 280 lb., dark haired man and 47 days later was 180 lbs., gray haired and basically an old man. He was only 59 at the time. I have watched him and my mom suffer for years. There is no way my dad could have ever went back to work. His day is basically consumed with sleeping on the couch. He eats but complains about nothing tasting good. He has had loose stools for 6 years. Not to be gross by they are very oily and usually his soiled undies get thrown away. His surgen is sending him to Minneapolis to see the VA surgen there, hoping that he will receive better care there. It's not that the doctors here haven't tried to help...I just don't think they have a clue what the whipple does to a person and the on going care they need. I feel so horrible for my mom...bless her, she has been right there with him.