Univ.of Chicago for treatment

That is really awesome. What do the Dr's say about how well she is  doing? It doesn't seem you would need more aggresive Dr's, they seem to be handeling her well.

why didn't she get into any trials when she was 1st DX?

she is doing well. she is still working. thry are /seem happy with her progress...although there is no cure. this stuff is always lurking.

there are no clinical trials in evansville,in. we didnt know what she was facing until after the fact.

mike

Well keep me posted on her progress. Even though there's no cure, there are long term survivors and that's what we are hoping for.

What happens next for your sister? When does she go back for another MRI?

she has an MRI every 2 months here in Evansville. My suggestion to you is to keep up with clinical trials in the chicago area. the best site is clinicaltrial.gov. they have a pretty good search engine. I wouldn't trust your doctor to find one for you. If they did it might be for there"pet project" . If you don't get in a trial you will find they won't get to far "out of the box"

mike

It is a trial, and it's simular to what duke was going to do. She can get out of the trial if things aren't working.

After over 2 years since DX does your sister have any complications from the disease?

I wonder why she isn't on any meds for prevention of re-growth?

was she DX with gbm stage 4?

What is the trial, CDX-111, or Temodar/Avastin?

She is doing quite well. Her GBM was in the left parietal lobe. She still works at the hospital (part time). She used to be a speed reader, but now reads on a 5 grade level or so. Other than that you couldn't tell it.

I think one of the reason she has done so well is she was not on steroids for very long. only a week or so after surgery.

She is on blood pressure medicine, kinda a side effect to avastin. She takes Amatryptaline for anxiety. She also takes Ruta/Calphos. I personally think that has helped her immensly. It is easy to get, cheap, and no side effects. A Homepathic doc in India treats GBM with it.

Her first resection was a GBM. Chicago said Grade 3.

I don't always look at this site, if you want to e-mail me its