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Recurrence?

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trueview123
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Subject: recurrence?
Date: 05/05/2008
I have Cin II Cin III dysplasia and had a LEEP procedure performed on May 1st to treat the precancerous cells. I have had a few breakdowns worrying it will come back or affect my ability to carry a child. I am only 22 and want to have children later in life. Will that be possible? What are the chances dysplasia will resurface? I had the LEEP performed on my exocervix i think it's called, if that makes any difference. Any help would be GREATLY appreciated.
Subject: RE: recurrence?
Date: 05/08/2008

I'm sorry you, too, have had to go through something that awful. LEEP does have the risk of cervical incompetence, but it really depends how much was removed. Worst-case scenario is that you would need your cervix stitched during pregenancy.

What would help is if you look at the lab report when it comes in. Not only will you have the information for yourself about the dysplasia and whether or not the margins are clear, (I'll keep my fingers crossed for you!) but you'll know how much was removed. As an fyi, your cervix isn't going to grow back to its original size, but it does regenerate to a certain degree. With a small amount of cervix removed, I equate it to having the tip of your little finger removed. You would still have the use of your hand without any trouble.

Insorfar as recurrences are concerned, there is anywhere between a 10-37% chance of it coming back within five years, after initial diagnosis and treatment. I was not happy when I learned that, and I wish I had better news for you. However, companies, such as Roche and Nventa are having good success with therapeutic vaccines/medication in clinical trials, with HPV-16. More research is being done for treatment of other HPV strains. In the meantime, see if your doctor has access to Roche's new HPV DNA test. I have been told it's much more accurate; that could help you in deciding how to address your health for the long term. I did that, and it made a world of difference.

Something to keep in mind is that your insurance company may not want to pay for it. In my case, I had to ask my doctor to do it. He had it available, but he can't automatically include it as part of testing. If you have to pay for the test yourself, talk to the finance department of your doctor's clinic about working out a payment-installment plan.

Patient
Patient
trueview123
Recommend this Message
Subject: RE: recurrence?
Date: 05/08/2008
Thank you SO MUCH for your response. I found it very reassuring and informative. My doctor said they removed about 3 centimeters of cervix. Is that a lot? Thanks again for responding. I don't really have anyone to talk to about this and my doctor hardly ever calls back and always has to "call me later" after about 3 min of phone conversation.
Subject: RE: recurrence?
Date: 05/08/2008

The amount cut sounds pretty standard for CIN III. How deep did he cut?

If your doctor doesn't really have time to explain anything, have you considered firing him and hiring a new one? Ethically, he is required to give you a full explanation and to take the time to answer any questions.

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