Holly, congrats to you and your mom! My mother too has beaten the odds thus far (19 months out from dx) and going strong. It's funny how you prepare yourself for the worse and don't expect to get a break and get it anyways!
Your mom sounds a lot like mine in respect to needing someone with her. It's a tough position to be in. Fortunately, my brother switched shifts and comes to my house during the day to be with her so I can still work. He's my only sibling, so it's just us (and my husband, God bless him!). Yet, we could not do this on our own if it were not for an unlikely support... My mother ended all treatment in June 07 and asked her family doctor for a referral to Hospice. The neurosurgeon had warned her that if she stopped treatment, she was likely to be back on the "fast track"... 3 months without aggressive treatment. That was 10 months ago and THANK GOD Hospice still graciously makes all support available to us. We supplement our family caregiving with in-home respite (one day a week my brother stays home and every other Saturday I get the day off). We've also been blessed to have a dear aunt from Georgia make 3 extended visits to help out.
I am not suggesting Hospice is an option for you... sounds like your Mom is still fighting the good fight! But checking out home health services, calling in more family resources, or hiring someone hourly may be worth looking into. I do know, having been a primary caregiver for 19 months (and counting) , that I NEED to work. I need the contact with the outside world and I need a facet of my life that GBM does not enter.
Happy Mother's Day, Holly. May the two of you enjoy every minute of it! Louise