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Caregiver
spagirl9191
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Subject: MRI
Date: 05/09/2008

Hi everyone...I've gotten a couple of private responses in regards to the last message I posted stating that my mom was given the option of waiting 6 months to have her next follow up mri. Trust me, that was HER choice, not mine. If it were up to me I would have chosen 6 weeks or 3 months. However, the dr. did not ask me, he directed the question towards my mother and took her answer without any further questions. I don't doubt that there will be changes over the next couple of months that will have me calling the dr. encouraging them to do an MRI...which is the deal. Any changes and I'm to call and they'll schedule an MRI. However, for the timebeing I am sticking with my mom's decision because it is a decision she made and if it is something that gives her  a sense of relief throughout this ordeal then I want her to experience that calm while she can.

It's actually hard to believe the mri was stable when I see such a decline in her mental status compared to months ago. And she is still so tired. She is going on her 5th week of being done with treatments and while I know it can take months for her to get her energy back she has a daily routine that consists mostly of napping. She never slept this much during treatment.....I guess it's the build up of all that chemo in her system??

 I would lik to believe that over the next 6 months nothing new will appear and we can go on with our lives. However there's the fear deep in my gut that it won't be that easy.

Thank you all for your responses, private or public. I take all your opinions, guidance, advice and prayers to heart. We are all in this together and I don't know how I would manage this time in my life without this website. You are all truly the only ones I communicate with who can understand the ups and downs of this cancer.

Keep the support coming and I will do the same for each of you!

Hugs,

H

Caregiver
Caregiver
Chiroman95
Recommend this Message
Subject: RE: MRI
Date: 05/09/2008

6 months to a Gbm patient could be eternity. Wow!!! where do you live? I can't imagine a doctor doing a follow up MRI every 6 months. I would change doctors ASAP !!! Believe me, I know what I talking about-been there and did those MRI's every 2 months not 6. Any other disease and I would say maybe, but with GBM-no way-sorry just my 2 cents.

 

Joe

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