Snuc

My husband was diagnosed with SNUC 4 months ago- he has undergone 40 IBRT treatments and 3 rounds of Cisplatin and 5FU.  Yes the Cisplatin is NASTY stuff.  He has had so much trouble with nausea.  They tried everything for nausea the first round and nothing helped.  The second round he had Emend and that helped a lot.  Still trouble with nausea, but not as bad.  He has a feeding tube through his his abdomen into his jejunum-cannot eat- food and liquids-even water doesn't taste good.  He goes in for IV fluids 3 times a week and Zofran IV as well as orally yet.  He also has a lot of trouble with mucus in his mouth and still a lot of sores and blisters in his mouth as well- this is nearly 3 weeks since his treatments have finished.  He also his difficulty with vision in the eye on the side of the tumor since the treatments.  He had a CT scan today and will have PET scan in a few days- we are scared to death about the results.  I don't know how much more he can take.  It scares me when I read about the prognosis of SNUC.  My husband has not gotten on the internet like I have and has not seen all of this-probably a good thing!  Anything positive anyone has read or experianced would be appreciated.