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Please Help! Juvenile Granulosa Cell Tumor

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Survivor
Survivor
rockspecialone
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Subject: Please help! Juvenile Granulosa cell tumor
Date: 05/15/2008

What is the percentage on a JGTC coming back? I have read all the stories and now I'm wondering if the doctors told me the tructh.  I have just been told for the first time that my Inhibin came back abnormal. Just wondering what case do i have that the tumor has returned.  please advise

thanks so much,

Charlene 

Patient
Patient
Moonlight642
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Subject: RE: Please help! Juvenile Granulosa cell tumor
Date: 06/10/2008

I don't want to scare you but mine has come back three times.  And I have Juvenile Granulosa they are telling me that i now have to have radiation.

 

But good luck to you.

Survivor
Survivor
rockspecialone
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Subject: RE: Please help! Juvenile Granulosa cell tumor
Date: 06/11/2008

Thanks for the heads up. When I had my regular 6 months inhibin test  done it came back abnormal, so I had to wait a month to retake the inhibin A and they also had me take the CA125. I'm not sure what the Ca125 should be but I know mine came back reading 117. I'm still waiting to here back about the inhibin A.  When I first had surgery the doctors had no idea what i had, and when they finally found out I was told how lucky I was. No one ever really told me I had a chance the tumor would come back. It has been  3 years in Feb. since I had my surgery, and all the stories I had read it looks like most of the women had a recurrance after about 2 - 3 years. If you don't mind me asking how long after your surgery did your tumor reappear and what were your ca125 and inhibin level reading.  Thanks so much for your help.

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