I just finished reading all messages this morning from February 2008 to present. I was dx'd with MF Sept. 07 (61 yrs. old) and constantly have questions no one seems to be able to answer. You are so right about the Internet info. being underwhelming and frightening. I have been to Cleveland Clinic and now dr. with a local hem. who keeps in touch with the Cleveland dr. I am so interested in all the talk about drugs many of you are on or have tried. Both hems. (Cleveland and local - Toledo, OH) said NO to any drugs other than Revlimid.
I need to continue working as long as possible because of health insurance, therefore I need to keep a decent quality of life as long as possible. I am resisting taking the Revlimid - although neither dr. said I must take it. I could go on and on - so many questions - don't we just need a magic mirror? God does not promise us tomorrow - just strength for each day! Thank you Lord for that promise.
My husband is stage 4 renal cell cancer, although he is doing very well at the moment! We trust God each and every day for the strength to go on and to meet people with a smile. I had to chuckle at the message that said how frustrating it is that so many people say how wonderful you look (are they thinking - are you sure you are sick?) - I have started answering I feel just great, thank you! What they don't know won't hurt them. I always add - but please keep praying for both of us!!! Thanks for listening! Great to be in touch with fellow MF sufferers!!
kah