Women who don't have BRCA mutations could have other high-risk genes that affect treatment choices
by Willing on Sat May 24, 2008 12:00 AM
by haraki on Tue May 27, 2008 12:00 AM
On 5/24/2008 Willing wrote:I am aware of 6 verified 5 year survivors at The Burzynski Clinic of DIFFUSE INTRINSIC BRAINSTEM GLIOMA and 1 survivor at the Envita Medical Center in Scottsdale Arizona with each of these facilitys using no radiation or chemotherapy.Hospitals all across the country are still telling parents that NO ONE survives DIPG and radiation and chemo are the "ONLY WAY" to treat this problem.In my neighborhood they call that a bald faced lie.If anyone out there is aware of a survivor of DIPG using another method to treat it, I would like for those people to contact me very soon so that I can compile a detailed list of names and put those names and there treatment choices on every cancer website I can find.I have talked to at least 100 parents since January 2006 and they all were told by hospitals that radiation and chemo were there ONLY option.THIS CON JOB MUST STOP!!!!
I read your message and could not believe this is happening. Please keep us informed as to what information you hear.
Keep up the good work if people can survive this long then we should be making doctors around the world listen and start using the practices that are working.
My sister Donna died aged 38 leaving 3 young kids was diagnosed as suffering from migraines even though she had lost her speech. tremors etc.
by Willing on Tue May 27, 2008 12:00 AM
by Shemay on Tue May 27, 2008 12:00 AM
On 5/27/2008 Willing wrote:You can bet your life savings on it.
by Ken_s on Tue May 27, 2008 12:00 AM
On 5/27/2008 Ken s wrote:Wow, six whole five year survivors. How many have they treated?
The trial results were as follows:
110 children treated--26 were symptom free at 24 months--6 of the 26 were symptom free at 5 years and are considered cured.
The FDA veified this to me in July, 2007.
The present hospital survival rates at ALL hospitals for DIPG is 0% past 24 months
by Hopefully on Fri May 30, 2008 12:00 AM
by Willing on Fri May 30, 2008 12:00 AM
On 5/30/2008 Hopefully wrote:Were any adults treated or just children? Age is a huge factor with this disease.
They were all children.Very seldom does an adult get DIPG but it is possible.
by Marje on Fri May 30, 2008 12:00 AM
by Arnold on Fri May 30, 2008 12:00 AM
Envita Intergrates it's care with the Mayo Clinic and another hospital in the same area who specialize in conventional care. They coordinate and work with the other doctors to assure that all factors of treatment potential are considered. So, those who might be concerned that if alternative does not work that conventional care is considered and available in the same geographical area.
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