On 5/31/2008
Sherriann wrote:
hi- the surgeon felt that they could not get a good margin of clear tissue around the tumor so the recommended treatment is 5 days/5 weeks radiation with cisplatin (chemo) once a week. I will not be getting hysterectomy now. How long ago did you have your treatment and how are you doing/feeling? also- what stage were you - i know that i am still stage 1B1, confined still to cervix but about 6 cm. I am starting treatment this tuesday june 3rd and soooo relieved to finally start as i learned back in February that i had cervical cancer and it's taken this long to finally get started - unfortunately i had cone biopsy that delayed treatment by a good 2 months, ( which was an unnecessary procedure for me) but i was told that it was next step, all they could do at that time. i should have got a second opinion as now i only have this treatment option available
I started my treatment in February 2007 and finished up in April 2007. I was 3b. The tumor was fairly large and I had one lymph node involved. Three months after the last internal radiation treatment, I underwent a PET scan that showed no evidence of disease. My radiation oncologist said that 90% of women who have NED in that first PET scan post-treatment will have been cured. I've been going for Pap smears and internal exams every three months and am now celebrating one year of being clean. Of course I am hoping that it's gone forever. I was treated at one of the best institutions in the country and I was treated with great respect and care.
As I said, the chemo was low dose and it didn't cause me to lose much hair or any other side effects aside from some gastro-intestinal stuff (constipation). The radiation made me fatigued after a couple of weeks and it caused diarrhea which was unpleasant but things could have been a lot worse. I took a leave of absence from work, my kids are grown, I'm on my own, so I could concentrate on myself and my needs, which was nice for me. It takes a while to rebound and regain your full strength...for me it was about 4-6 weeks.
Make sure you ask your doctors whatever questions you might have. The nurses are also wonderful and take great pride in their work. You can email me privately if you'd like. Good luck and keep us posted.