What Is This?

Hi TrumpetMan:

My husband, NPC stage IV a, squamous cell was just given the free and clear PET scan yesterday. 

I started my message to you in this way for a purpose.  Survival of NPC is very possible with the right plan in place.  I strongly encourage you to join and read discussions on the general page of Head and Neck section of this website.  These survivors were instrumental in providing insight for us all along the road.

Which, by the way, can be brutal.  Make no mistake that cancer treatments will kick your rear.  But you CAN do it!  I have a lot to share if you want it.  Just let me know.

As to the type of cancer you have, I am not an expert.  What I do know is that there are different forms of NPC cells and squamous and lymphoepithelioma (aka Regaud type) and two of them.  I also found that the type didn't seem to affect the treatment plan or the outcome.  This might be helpful to know.  Wikipedia actually has some layman type information you can click thru.

Post anytime you have questions and I'll try to help with sharing our experience.

Good luck,

On 6/10/2008 Mediator wrote:

Hi TrumpetMan:

My husband, NPC stage IV a, squamous cell was just given the free and clear PET scan yesterday. 

I started my message to you in this way for a purpose.  Survival of NPC is very possible with the right plan in place.  I strongly encourage you to join and read discussions on the general page of Head and Neck section of this website.  These survivors were instrumental in providing insight for us all along the road.

Which, by the way, can be brutal.  Make no mistake that cancer treatments will kick your rear.  But you CAN do it!  I have a lot to share if you want it.  Just let me know.

As to the type of cancer you have, I am not an expert.  What I do know is that there are different forms of NPC cells and squamous and lymphoepithelioma (aka Regaud type) and two of them.  I also found that the type didn't seem to affect the treatment plan or the outcome.  This might be helpful to know.  Wikipedia actually has some layman type information you can click thru.

Post anytime you have questions and I'll try to help with sharing our experience.

Good luck,

 

 

I also had the squamous type.  I was diagnosed in 2003 and have been in remission since May 2004.  It was one heck of a rough ride that I hope I would never have to endure again.  I still have many side effects but I am learning to live with them the best I can.