Removal of Rectum, What to expect???

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Removal of Rectum, What to expect???

by Super01Mom on Thu May 29, 2008 12:00 AM

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I received test results today that indicated that my entire rectum needs to be removed with a resection of the colon. I was wondering if anyone has ever had this surgery and what I should expect. The doctor said I would have an urgency for a few weeks to have a BM and will be running to the bathroom. I also will lose some control over my bowels because of muscles that will need to heal. It is kind of scary to think about and I am only 45 not ready to wear diapers just yet. If anyone has any advice or wisdom please do share.

Sheryl

RE: Removal of Rectum, What to expect???

by rosydosy on Thu May 29, 2008 12:00 AM

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On 5/29/2008 Super01Mom wrote:

I received test results today that indicated that my entire rectum needs to be removed with a resection of the colon. I was wondering if anyone has ever had this surgery and what I should expect. The doctor said I would have an urgency for a few weeks to have a BM and will be running to the bathroom. I also will lose some control over my bowels because of muscles that will need to heal. It is kind of scary to think about and I am only 45 not ready to wear diapers just yet. If anyone has any advice or wisdom please do share.

Sheryl


Hi Sheryl,

I had my rectum removed in Nov. 07 and had a temporary colostomy.

I had the colostomy reversed Feb. 28, 2008.  And yes, I was running to the bathroom.  My doctor told me to take Metamucil and I was going to the bathroom 20-30 times a day when I got home from the hospital.  I switched to Citrocel tablets about a month ago and it made a big difference.  It cut bathroom time in half.

I also had radiation and chem before the first surgery.  They said radiation also was a cause of the bathroom problems and incontinence.  And yes, my muscles were affected by the surgery.  It has gotten better, but when I have to go, I cannot wait.  I wear a Kotex pad all the time.  It's better than a diaper!  Also, your anus will be very raw.  Try vaseline, Desitin, baby wipes w/out alcohol and soaking in a tub of warm water with baking soda.

I was convinced that I would never be able to leave my house at first, but I am back to teaching 2nd grade.  Thank goodness, I have a bathroom in my classroom.  It is a lifesaver.

I take Lomotil and Immodium everyday.  Some days are worse that others so I will take more medicine.

It will take time to get back to halfway normal.  I am 50 and have a lot of living to do yet.  I am not one to give up and I try to have a positive attitude.  God has gotten me through this much--I know He has more in store for me.  I will keep you in my prayers.  You can get through this too.

Rosalyn

RE: Removal of Rectum, What to expect???

by KellyBelle on Thu May 29, 2008 12:00 AM

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I'm a 47-year old female with stage III colo-rectal cancer, and had a colo-anal reconstruction three weeks ago - I have no rectum.  I feel good, but things are just a bit "different".  I was able to keep my anus and sphincter, so no colostomy bag or anything.  Oh, and they wouldn't let me out of the hospital until I had a bowel movement --that took four days.  Within a week after surgery, I was ready to go to the mall (well, for a very short time). 

I feel a pressure to "strain" sometimes, which I know isn't good after such a major surgery.  The muscle relaxants the doctor prescribed help with that; the feeling is supposed to go away when I completely heal.  Sometimes I don't go for a couple of days, then I'll spend several hours going.  And my poop has a different texture. 

My surgery was also done laprascopically, so I didn't have to go through the healing process of full abdominal surgery. I strongly urge you to find a surgeon who can do this procedure laprascopically --I don't think there are many in the country, but it sure did cut down my healing time.

Good luck!

Kelly 

 

 

 

RE: Removal of Rectum, What to expect???

by CaregiverPatti on Mon Jun 02, 2008 12:00 AM

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On 5/29/2008 KellyBelle wrote:

I'm a 47-year old female with stage III colo-rectal cancer, and had a colo-anal reconstruction three weeks ago - I have no rectum.  I feel good, but things are just a bit "different".  I was able to keep my anus and sphincter, so no colostomy bag or anything.  Oh, and they wouldn't let me out of the hospital until I had a bowel movement --that took four days.  Within a week after surgery, I was ready to go to the mall (well, for a very short time). 

I feel a pressure to "strain" sometimes, which I know isn't good after such a major surgery.  The muscle relaxants the doctor prescribed help with that; the feeling is supposed to go away when I completely heal.  Sometimes I don't go for a couple of days, then I'll spend several hours going.  And my poop has a different texture. 

My surgery was also done laprascopically, so I didn't have to go through the healing process of full abdominal surgery. I strongly urge you to find a surgeon who can do this procedure laprascopically --I don't think there are many in the country, but it sure did cut down my healing time.

Good luck!

Kelly 

 

 

 


 

Hi,

 I know I have written about this before but my husband has had the same surgery and the same problems as you .He had his surgery done at Lankenau Hospital in Pa.by one of the Best Dr.s in the country that do laproscopic surgery for this cancer .As a matter of fact his practice of he and his Father ( whom pioneered the procedure of Sphicter Preservation ) they are absolutly amazing Dr,s We,ve met more people from around the country who come to thier practice for this procedure .I f you would like to look them up on line go to ; Marks Colo Rectal fondation  in Lankenau Hospital in  Wynnewood Pa.

I do know that my husband had all the same problems with accidents and being in the bathroom for what seemed like hours .But it did eventually get better ...a lot better !!!!! So hang in there and what ever you do DO NOT stop going out into the human world ..Even if you have to wear a depends

No one knows that you have one on but you >>>Seriously get back to your old routine a.s.a.p. It will get better !!!! 

RE: Removal of Rectum, What to expect???

by Kat123 on Mon Jun 08, 2009 12:00 AM

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June 08-09

Hello Kelly: (and Rosalyn as well)

We have a similar situation with a relative of mine, she has Cervical cancer and she will have a total pelvic removal, bladder, ovary and rectum. I imagine she will be experiencing a similar situation you have.  I was wondering, in your opinion, do they always  save the sphincter muscle after this type of surgery? And is there anything our relative should be asking  the doctor before this procedure?

Thank you in advance.

Katia

 

RE: Removal of Rectum, What to expect???

by chefjohn on Mon Nov 29, 2010 01:56 AM

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Hi Kelly,  I just had my rectum removed as well and having very similar symptons.  I have a question for you.  Are you having difficultly finding the right foods to eat????  I have been going to the restroom at least 10 times a day, some good bowel movements and some not so good.  I just can't get a grip on what is a good diet for me.  Any suggestions.

Thanks

Chef John

RE: Removal of Rectum, What to expect???

by chefjohn on Mon Nov 29, 2010 03:44 AM

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If any one else is going thru the same problem going too many times a day like every hour having alot of discomfort from small amounts of stool taking up so much time trying to go to the bathroom the burning sensation I'm looking for some answers solutions should I starve my self????? eat less, eat bran vegtables eat protiens, not spicy or bland.

RE: Removal of Rectum, What to expect???

by Ellis73 on Sat Dec 04, 2010 02:23 AM

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HI

JUst wanted to let you know how I handle the no rectum problem. LIke you said going to the throne so often you become very sore. like there is no control, but there is some help for you. I use a hot water bottle with the smal nozzle. Fill it with very warm wate not hot and use that instead of toliet paper. After thw wash dry with a soft damp towel. If you are berning or reall sore use this product CARMEX it comes in a vey small jar it is used for cold sores chapped lips.It will sting the first time you use it if you are really raw, but it works. Now i take the cotton ovals they come in a packsge of 50, take one out a put just a little vasoline on it and place in to the rear end kind of push in a fold.the butt cheeks will help hold it in. This work really well for what I call the oozes. I also wear the men diaper just for protection.I take the imodium after each meal. I had the bag for about 3 months the they took that out put the colen back together. I only eat 1 meal aday and that is in the evening. As you will find out between 22 and 24 hrs the bowle begins it's journey. It does not seem to matter what I eat  it still the same results. Hope this will help

good luck 

 

 

RE: Removal of Rectum, What to expect???

by northland on Mon Apr 04, 2011 03:36 PM

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I had a rectal resection in 1996, where a large section of rectum and colon were removed, followed by standard chemotherapy and radiation.  Good news, I'm alive and in good health.  Bad news:  I still have incontinence and need to run to the bathroom frequently.  I also experienced a lot of pain, irritation, urgency, accidents, etc.  The doctors recommended a low-residue diet, which did not much good, as well as being unhealthy.  I've tried every type of diet and found from experience that a natural food balanced diet along with daily brown rice, limited meat, dairy is the most helpful, Also try to cut out as much junk food/refined food as possible.  Soaking in hot water soothed the irritation also.  I used to take lomotil to prevent the accidents for a few hours, but I heard it's not good to take that.  The brown rice (short grain taste a lot better), is binding and also very easy on the digestive system.  Also try glutinous brown rice--very tasty.  Available at health food stores and places like Whole Foods.  Spices are all good for you as well as all vegetables.  The best for colon health is Turmeric (common in Indian foods).    I must admit, food has become the center of my life, and this condition has forced me to enjoy many kinds of interesting ways of eating.    I hope I have been of some help, and wish you the best of luck.

RE: Removal of Rectum, What to expect???

by eaglemom10 on Tue Aug 16, 2011 03:17 AM

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I had cervical cancer last year. Due to internal radiation a fistula formed in my vaginal wall into my rectum. I have a colostomy. I've had one for a year now. I've gotten used to it and returned to work etc.. The fistula will not heal on its own. So in order for me to get rid of the bag. The doctors want to do a hysterctomy and remove my rectum and connect my colon to the anus. But i really need someone to tell me the truth. Is it really worth having this surgery? I  have accepted the colostomy . I am very worried about accidents etc. I dont have to worry about what I eat and running to a bathroom etc. The cancer is gone so it is really not a matter of medical need.

 

 

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