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Subject: DIPG
Date: 06/01/2008
Has anyone with DIPG experienced sudden swelling in the legs?
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suzthebrit
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Subject: RE: DIPG
Date: 06/01/2008
I don't know what DIPG is but my Dad had sudden swelling in his legs and 2 days later was hospitalized for a massive pulmonary embollism. Keep an eye on this and at the first sign of breathlessness call the doctor or go to the ER immediately.
Subject: RE: DIPG
Date: 06/01/2008

Better yet, call your doctor right away, or go to the ER. Don't wait for shortness of breath. A massive PE can kill quickly.  If it is sudden leg swelling, it very well could be because of a deep vein thrombosis, which can break up and go to the lungs (pulmonary embolism), brain (stroke), or heart (attack).  It is simple enough and non invasive to get a doppler done to look for a clot. If they find it you can be put on blood thinners which can prevent the above disasters.

Of course it could be something else, but it's better to be cautious.

My husband also has had PE, as well as a stroke.  Last month his left leg swelled and they brought a mobile doppler to our house (he is on hospice and stays on a hospital bed in our living room).  Sure enough he had developed a DVT again.  We resumed blood thinners, and the swelling came down and nothing bad happened this time.

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suzthebrit
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Subject: RE: DIPG
Date: 06/01/2008

Good point cozymel. You should go to the doctor or ER before the breathlessness. We were lucky with my Dad. The doctors said he should be dead, they don't know how he survived the embolus but he did.

Like Cozymel said, it is quick and painless to get an ultrasound on the legs to see if there is a clot there. Better safe than sorry.

Keep us posted

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