Average Rating:Rating
Rate this Discussion: rate!

Clinical Trials, Smoking And Duke

Switch to Single View
Records 1-6 of 6
Caregiver
Caregiver
MyMomMyRock
Recommend this Message
Subject: Clinical Trials, Smoking and Duke
Date: 06/05/2008

Hi Everyone,

Mom has her appt today at Duke and Just wanted to ask a few questions.  Will they consider you for a clinical trial at Duke (dx GBM IV) if you are a smoker?

How soon will treatment start from Duke?  They have all MRI's, pathology reports, medical records, etc

What will happen at these first two appts?  Thursday @ 2, and Friday @ 9 am.  They said she would be there about 3-5 hrs on Friday.

I am very anxious.  My sister is in N.C with her and I am here in Florida with my 4 children.  I wish I could be there.  Any advice on what is going to happen would be great!  Thanks

Doctor / Nurse
Doctor / Nurse
Lorre G
Recommend this Message
Subject: RE: Clinical Trials, Smoking and Duke
Date: 06/05/2008
These are all questions you need to ask the physicians or nurses at Duke,  No one on this panel knows your history nor can they answer what the doctors at Duke might decide for you.  Each patient is different.
Subject: RE: Clinical Trials, Smoking and Duke
Date: 06/05/2008

Hi There.

I don't know the anwser to your first question - about the smoking and clinical trial at Duke.  My inclination would be to say that it would not impact whether or not they would accept her into a clinical trial, but I can't give you a definite answer on that.  My husband is a smoker too, but he didn't enter a clinical trial because they thought Avastin / CPT-11 was the best way to go with him. 

As to what happens at the appointments.  The first day - today - she would have seen the physicians assistant first, who would take a history and perform an initial evaluation and examination.  They would have asked her what treatment she has been on.  They will have looked at the scans and formed an opinion of what to do next.  Tomorrow, she will meet with a nurse who will discuss the treatment, all the side effects and answer questions.  She'll also give your Mom a big fat binder full of information, and a blue tote bag from the Preston Robert Tisch Brain Tumor Center.  Next she will meet with a social worker to discuss any concerns she and the family might have such as the effect the treatment will have on the whole family, concerns about finances, caregiving, etc.  Then possibly a child life specialist to discuss how and what to tell any young children in the family.  Since we have two young grandchildren, the CLS spent some time talking about what they knew of Grandpap's condition and what to tell them in a way that was age-appropriate.

When might they begin treatment?  Maybe as soon as tomorrow - it just depends on what they decide the best course of treatment is.  Lots of people have gone to Duke and ended up having the first treatment - or in some cases surgery - before they go back home. 

Hope this helps somewhat.  Keep us posted.

Best of luck,

Barb

Subject: RE: Clinical Trials, Smoking and Duke
Date: 06/05/2008

Forgot to tell you that after the physcian's assistant, she would have seen  one of the Duke neuro-oncologists!!

Barb

Caregiver
Caregiver
MyMomMyRock
Recommend this Message
Subject: RE: Clinical Trials, Smoking and Duke
Date: 06/05/2008

Thanks Barb,

You are awesome!  Mom did really well today!!  Lots of good news from Duke.  She was accepted :) :) :)in the clinical trial for Avastin/??!!!!!!  I am so excited.  She has an MRI scheduled for 9:30 tonight and tomorrow she has education classes???

Sounds like what you were telling me.  She will start treatment Monday!!  I am so thankful. 

Thanks for your support.  I was hoping you would post to my message. 

Jahnette

Subject: RE: Clinical Trials, Smoking and Duke
Date: 06/06/2008

Great news Jahnette!   My best to your mom and to you and your whole family! 

We're all in this together!  

Kind regards,

Barb

Records 1-6 of 6
Switch to Single View
close




Sending...
Required Fields All fields are required.
close
User is No longer Ignored
Show messages from this user
close
Report Abuse
Anonymous Note to Administrator:

Reporting
Latest Messages Show More
advice to the newly dx? Posted by vajoe on 08/28 08:03:43 PM
RE: carott juice treatmen Posted by Dlynn1210 on 08/28 08:02:46 PM
RE: A Scam from Pat Landi Posted by CaregiverPatti on 08/28 08:01:45 PM
RE: Waiting to Die: GBM I Posted by spagirl9191 on 08/28 08:00:31 PM
RE: carott juice treatmen Posted by Dlynn1210 on 08/28 07:59:11 PM
RE: Clear MRI, but still Posted by 05mama on 08/28 07:56:48 PM
Primary Peritoneal Cancer Posted by Nurse Karen on 08/28 07:49:44 PM
RE: LID? Posted by tracyonmaui on 08/28 07:48:24 PM
RE: carott juice treatmen Posted by Dlynn1210 on 08/28 07:48:09 PM
RE: Anyone With Stomach C Posted by canadianmary on 08/28 07:39:56 PM
RE: Hi from Evelyn Posted by Phil A. on 08/28 07:38:59 PM
Bladder Cancer - 3D Medical Animation