Recovery from CHOP + R chemotherapy

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Recovery from CHOP + R chemotherapy

by Butyl on Sun Jun 08, 2008 12:00 AM

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I am just completeing a cycle of 6 sessions of CHOP + R chemo for diffuse large B-cell lymphoma. I am lucky since the disease seems to be in remission.

The chemo has given me extreme fatigue and short windedness, my tiredness has worsened with each treatment, and I am now anemic, and my blood chemistry is screwed up. I realize my physical  recovery after chemo stops will take time and I would like to learn the experience of others in the community who may have gone through the treatment.  Will it take months, were you making real progress after 6 months. Were any diets aof particular help?  Would appreciate any info.

Thanks,

Irv

RE: Recovery from CHOP + R chemotherapy

by Hope28 on Thu Jun 12, 2008 12:00 AM

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Hello,

My dad just went through his first session of RCHOP.  It's been 1 week since his first treatment.  He's a little tired and his stomach feels quite bloated.  He feels like he's very full (like after eating Thanksgiving Dinner).  Any suggestions on things that may helped you out?

Thanks :)

RE: Recovery from CHOP + R chemotherapy

by Butyl on Thu Jun 12, 2008 12:00 AM

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Many people find it is better to eat several small meals, or snacks during the course of the day rather than conventional sized meals. As you will see from reading the messages in this thread  CHOP+R is an aggresive chemotherapy. Unfortunately, I, and many others found increasing fatigue, weakness, and other problems with  the number of  chemo treatments.   Hopefully,the treatmemts will help cure the disease. All good wishes.

Irv

RE: Recovery from CHOP + R chemotherapy

by Luv4jesusanu on Thu Jun 26, 2008 12:00 AM

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HI Buty, I completed Chop-rituxan treatment last yr. And Praise the Lord am in remission now. The tiredness didnt last long for me.  I just adjusted my routine to how I felt. Plus made sure I ate alot of protien.  Found that drinking adirondyck flavored water. Was the only  drink that didnt taste like metal. :)  I now hjave maintenance rituxan treatment evry 6 months for 3 sessions I think. I may be able to have 4. But still have to check it out. Anyways my friend I pray youwill do well and regain your stregth very soon. God Bless Carla

RE: Recovery from CHOP + R chemotherapy

by PJR11 on Thu Jun 26, 2008 12:00 AM

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Hi Irv,

I can definately relate to your concerns.  I was diagnosed with lymphoblastic lyphoma 15 Years ago.  I was 27 years old.  I recovered from CHOP and chemo and radiation.  I was an outpatient at the Dana Farber for 8 months until I went into remission. I then decided to have a bone marrow transplant. I am in good health now and feel great. 

I can only recommend what I found helpful and really feel in some way helped me.

If your doctor says that your immune system is strong enough to drink juice, using a juicer, try it.  I know you must feel week and very tired that is why I'm tellling you this.  I have a juiceman junior and I used whatever I could get as far as fruit, veggies, garlic, ginger, parsly, beet leaves, garlic is very good for your blood.  Juice it up raw with other veggies.  Drink it down and block your nose if you have to.  In my mind I was so positive that the chemo I was getting, that I would eventually flush it out of my system with the juice.  I tried to do about 2-3 glasses a day.  Sometimes I wouldn't have the strength, so if someone else can do it for you that's even better.

If your tired, rest it is very important to keep your strength. I would recommend keeping a couple of very light weights next to your bed, only lift when you feel you can push yourself to.

Stay positive, and if you need to talk about it just email me at

--Message edited by CancerCompass staff. For personal protection, email address removed. Consider private reply. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html--

 Take Care

 

     

 

 

 

RE: Recovery from CHOP + R chemotherapy

by Kicking_Cancer on Thu Jul 31, 2008 12:00 AM

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On 6/8/2008 Butyl wrote:

I am just completeing a cycle of 6 sessions of CHOP + R chemo for diffuse large B-cell lymphoma. I am lucky since the disease seems to be in remission.

The chemo has given me extreme fatigue and short windedness, my tiredness has worsened with each treatment, and I am now anemic, and my blood chemistry is screwed up. I realize my physical  recovery after chemo stops will take time and I would like to learn the experience of others in the community who may have gone through the treatment.  Will it take months, were you making real progress after 6 months. Were any diets aof particular help?  Would appreciate any info.

Thanks,

Irv


Hello and congratulations on the remission!!!! 

I have completed 6 cycles of CDOP/Rituximab (Rituxan) for agressive diffused B cell lymphoma.  During the chemo my red cells dropped so low transfusions were required (6) total.  My white cells dropped so low I had many injections of Neulasta and a preventive antibiotic, Levaquin.

I'm 5 months post chem and my stamina slowly improved over the course of that time.  The fatigue is still present, but I've learned to pace myself.

At the end of chemo the oncologist shared with me that patients required 6-12 mos to recover to pre-cancer status; I hope he's correct and I do return to my normal healthy conditon.  The shortness of breath was a real drawback which subsided greatly as time went on; especially once the chemicals began to leave my system..My personal experience is continue to drink copious amounts of fluids and eat a diet high in protein. 

You didn't mention age, but that too, can be a factor in a slower healing; the process takes longer, I'm told.  I'm a young 65..

I too, am in remission and will start maintenance chemo in Jan 09 every 6 months for 2 years...

Good luck, most importantly, take GOOD care of yourself, we are currently surviving one of the most nastiest chemos and beat the "bigC".  Lyn

RE: Recovery from CHOP + R chemotherapy

by kcpennymays on Fri Oct 31, 2008 12:00 AM

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I am over 6 months out from my last treatment now and feel I am at full strength now.  It definitely took awhile; I think I didn't realize how crummy I was feeling until I recovered.  There would be good days and bad days even 4 months out.

 

Remission is a wonderful feeling!

RE: Recovery from CHOP + R chemotherapy

by joyfuljulie on Sat Oct 10, 2009 12:00 AM

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Hi,

I'm new to this, diagnosed in early Sept with first chemo Sept 30. I have large B cell non hod. lymphoma, started in a residual piece of tonsil. I just wanted to say that I did a lot of research on acupuncture and if you look under Cancer Institute there are a lot of studies that support its use during chemo. I had my first acupuncture treatment yesterday because the bone pain and nausea were so great (had neulasta a week ago). I felt some immediate effects and even feel relatively ok today. I look forward to meeting and learning from all of you. I just started a new practice as a nurse-midwife and thankfully everyone is so supportive. This is really a new and strange thing in life.

 

I liked the info about the juicer, I'm going to get one, it has to be good for us.

 Nice to meet all of you,
Julie

RE: Recovery from CHOP + R chemotherapy

by smoko on Tue Oct 27, 2009 12:24 AM

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On Jun 08, 2008 12:00 AM Butyl wrote:

I am just completeing a cycle of 6 sessions of CHOP + R chemo for diffuse large B-cell lymphoma. I am lucky since the disease seems to be in remission.

The chemo has given me extreme fatigue and short windedness, my tiredness has worsened with each treatment, and I am now anemic, and my blood chemistry is screwed up. I realize my physical  recovery after chemo stops will take time and I would like to learn the experience of others in the community who may have gone through the treatment.  Will it take months, were you making real progress after 6 months. Were any diets aof particular help?  Would appreciate any info.

Thanks,

Irv

Hello group Hello Irv I see a lot of myself in these posts. Had 4 months of R-CHOP for Lymphoma NH, finishing first week Jan. 2009. Lucky to pick it up quickly - a tumor on clavicle/collar bone, no evidence of LNH anywhere else. Second check up with oncologist in a few weeks time, all looks OK, but stem cell harvest on ice just in case. Recovery seems non existant - perhaps my age - 64. Very similar post chemo symptoms to most of those mentioned in this thread. My lifestyle - physical, mental, food intake, social - has certainly changed and not for the better. I have lost my passion, but maintain nothing less than a positive outlook. My oncologist has succeeded (for the present) in arresting my NLH, but I have the feeling oncologists interests are more in arresting cancer (they are very successful and very busy) and not so much in post chemo recovery. Any comments? They seem to recommend healthy diet and exercise, but not anything specific regarding nutrition ie vege juice or whatever. I used to regularly drink juiced veges, but it is one of the many things I just "don't feel like doing" any more. I have to say I am very sceptical of the magical fixers and ideas I see mentioned on the net. I am told physicians look at patients as a whole, rather than specific symptoms. Has any one sought the opinion of a physician? Great to find this informative site. Smoko. (No, I don't smoke)

RE: Recovery from CHOP + R chemotherapy

by ctyslcr on Sun Nov 15, 2009 08:22 PM

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I was diagnosed with type B lymphoma NHL in July 2009.  It was located in my small intestine.  Basically from the weight of the tumor my intestine kinked like a hose and I had a bockage.  A Catscan comfirmed this and surgery was performed.  About 18 inches of my small intestine was removed.  I was VERY lucky.  Usually these types of tumors hang out and eventually spread to other organs.  My tumor was just hanging out and not active at all.  By kinking I had a warning.  I was always very positive regarding the prognosis.  I told my surgeon that cancer is not in my gene pool.  We die from bad heart valves.  LOL.  Well my echogram was also VERY good so my valves are healthy.  In retrospect I had to get cancer to find out I was basically a healthy person.  Anyway, I started the CHOP-R treatments and just had my 5th of 6.  My last one is going to be December 1.  I will have a Petscan in Feb to make sure things are moving in the right direction.  My treatments have been relatively uneventful.  I am self employed and usually travel by car to Las Vegas once every 4 weeks, usually the week prior to a treatment.  This is a 6+ hour drive.  I am blessed as I have not had the issues that some of you have had.  I am 58 years old and relatively active.  I do know that I have lost muscle mass and endurance but I really don't suffer alot from fatigue. When I do feel tired I take a 1 hour nap and that seems to bring me back.  My only suggestion is that you stay positive.  Think good thoughts.  We will all get through this. 

The other thing that I noticed is that I have this growing feeling of brotherhood toward other cancer patients.  I can't explain it except that I feel that I joined a club for life.  When I get my strength all the way back and the chemo is behind me I think I want to visit those cancer patients less fortunate and spend time with them.  Hopefully I can make a difference.  I had great doctors, nurses and family and friends to support me.  I'd like to give something back.

Regards,

Peter

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