New To All Of This

Hi there,

I had a lung biopsy on June 5, 2008, and received my results yesterday (June 9th).....adenocarcinoma.  A PET scan is scheduled for June 24th and from there, I guess it will be determined as to which route will be taken; surgery, or chemo/radiation.

Yesterday and this morning I have been on an emotional roller coaster.  About the time I think that the tears cannot flow anymore, they somehow manage to start again.  How does one handle it all?  Of course, I had to do research via the Internet as soon as I received "the verdict" and that did nothing to assure me that this could be beaten.  I live about a three hour drive from where I will be having treatment (PET will be 5 hr drive for me [one way of course]).

I am a female disabled veteran and in decent health other than having Dystonia.  2 yrs ago I had DBS (Deep Brain Stimulation) to help me gain control of my body again and now this comes along.

Thanks for your time,

adaira

Well, this is not looking like a place that I can find support at.  So, please disregard by message above.

 

adaira

Adaira,  Please let us try to help you.  I am so sorry about your illness.  I too am new to this board.  My husband just had esophageal cancer surgery and we just had another appt today with one of his surgeon. We found out just before Christmas last year.  I know how many tears I have cried for my husband but I cannot know how scared you much feel.  Do you have any family?  Please just try with all your might to get to all the scans and take the best possible care of yourself, do whatever is the best for you.  Please feel free to send me a private e-mail if I can help you in any way.  I will keep you in my prayers tonight. 

 

On 6/11/2008 adaira wrote:

Well, this is not looking like a place that I can find support at.  So, please disregard by message above.

You're not yet at the point where you know what "support" you can use. You will probably find that just knowing there are others out there like you will be more supportive than you think. Keep writing and asking questions about specific things and wait for the answers.

I am a female disabled veteran, and I have watched a few people go through this thing, so I can see a few bits of your situation from different perspectives.

Drive on...

--jayne

 

 

On 6/10/2008 adaira wrote:

Hi there,

I had a lung biopsy on June 5, 2008, and received my results yesterday (June 9th).....adenocarcinoma.  A PET scan is scheduled for June 24th and from there, I guess it will be determined as to which route will be taken; surgery, or chemo/radiation.

Yesterday and this morning I have been on an emotional roller coaster.  About the time I think that the tears cannot flow anymore, they somehow manage to start again.  How does one handle it all?  Of course, I had to do research via the Internet as soon as I received "the verdict" and that did nothing to assure me that this could be beaten.  I live about a three hour drive from where I will be having treatment (PET will be 5 hr drive for me [one way of course]).

I am a female disabled veteran and in decent health other than having Dystonia.  2 yrs ago I had DBS (Deep Brain Stimulation) to help me gain control of my body again and now this comes along.

Thanks for your time,

adaira

hi  adaira  I know how you feel I’m an ex soldier I live in Australia  and I have cancer the doctors wont operate on me as to risky as Iv had heart problems in the pass so I had to find other ways to fight the cancer. has any one explained to you what cancer is how it works and how to help your body fight it on this site help is there it just takes a little while to respond sometimes as ever one on it either has censer or is caring for some one with cancer other people who help went doctors who have been fighting cancer not for years but for decades and wining first thing I ask to do was get detoxified go on the net and get a cause of cellular liquid zeolitte to remove the build up toxins from your body by the way cellular liquid zeolitte can not be taken if your on chemo the section thing stay away from simple sugars these are the sugar we put in tea coffee cakes cans of soda etc. yoy also will need to take large amounts of  antioxidants like Vitamin C  if you post me a message I can post you a really good cancer fighting diet it from a lady whose mum is fighting lung cancer and is wining. 5 hr drive that hard I been told by other cancer patient you have to have hope you have to want to live if you believe you are going to die you will. And you have to believe in your self. Will that all for now until next time adaira

God bless Ray  

 

 

On 6/10/2008 adaira wrote:

Hi there,

I had a lung biopsy on June 5, 2008, and received my results yesterday (June 9th).....adenocarcinoma.  A PET scan is scheduled for June 24th and from there, I guess it will be determined as to which route will be taken; surgery, or chemo/radiation.

Yesterday and this morning I have been on an emotional roller coaster.  About the time I think that the tears cannot flow anymore, they somehow manage to start again.  How does one handle it all?  Of course, I had to do research via the Internet as soon as I received "the verdict" and that did nothing to assure me that this could be beaten.  I live about a three hour drive from where I will be having treatment (PET will be 5 hr drive for me [one way of course]).

I am a female disabled veteran and in decent health other than having Dystonia.  2 yrs ago I had DBS (Deep Brain Stimulation) to help me gain control of my body again and now this comes along.

Thanks for your time,

adaira

Hi Adaira,

I was diagnosed in April 2007 with NSCLC Stage IV.  Started with radiation and then chemo. Now am on maintenance drug called Tarceva that I take everyday.  I am currently in remission with no tumor growth and the side effects from the Tarceva are only minor.  You still have a while to go to determine your treatment as all of these tests will show what you are a candidate for.  I am in a clinical trial study so the drugs are paid for.  Ask your doctor to enroll you in the studies available.  I can tell you to stay off the internet.  In general, most of the information is outdated and every case is so different.  Its too scary to see those statistics!  But...statistically I should already be dead...so don't believe all you read.

I know what you mean about crying 24/7.  To top things off, the chemo put me right into menopause...talk about crazy times.  Where do you live?  Do you have family and friends close by?  Write anytime and let me know what your scan shows.  Good Luck!  Donna

 

On 6/10/2008 adaira wrote:

Hi there,

I had a lung biopsy on June 5, 2008, and received my results yesterday (June 9th).....adenocarcinoma.  A PET scan is scheduled for June 24th and from there, I guess it will be determined as to which route will be taken; surgery, or chemo/radiation.

Yesterday and this morning I have been on an emotional roller coaster.  About the time I think that the tears cannot flow anymore, they somehow manage to start again.  How does one handle it all?  Of course, I had to do research via the Internet as soon as I received "the verdict" and that did nothing to assure me that this could be beaten.  I live about a three hour drive from where I will be having treatment (PET will be 5 hr drive for me [one way of course]).

I am a female disabled veteran and in decent health other than having Dystonia.  2 yrs ago I had DBS (Deep Brain Stimulation) to help me gain control of my body again and now this comes along.

Thanks for your time,

adaira

Hello, I am a care giver of my only sibling who is 40/non smoker with non-small cell lung cancer that has spread from his lung to his bones to his lymph system and finnally his brain... Please dont leave this site.. I look forward to comming on here and hearing from survivors, caregivrers and  people who are going thru... We love you and I mean that I triy and visit and write as much as I can to encourage people try new things and know that non of us are alone ... please stay and we will all pray together for each other and if I have any answers I iwlll surely give them to you...

 

On 6/10/2008 adaira wrote:

Hi there,

I had a lung biopsy on June 5, 2008, and received my results yesterday (June 9th).....adenocarcinoma.  A PET scan is scheduled for June 24th and from there, I guess it will be determined as to which route will be taken; surgery, or chemo/radiation.

Yesterday and this morning I have been on an emotional roller coaster.  About the time I think that the tears cannot flow anymore, they somehow manage to start again.  How does one handle it all?  Of course, I had to do research via the Internet as soon as I received "the verdict" and that did nothing to assure me that this could be beaten.  I live about a three hour drive from where I will be having treatment (PET will be 5 hr drive for me [one way of course]).

I am a female disabled veteran and in decent health other than having Dystonia.  2 yrs ago I had DBS (Deep Brain Stimulation) to help me gain control of my body again and now this comes along.

Thanks for your time,

adaira

Hi adaira I like to give you more a few more choices  can you contact shemay she had a doctor do a  vitamin C intravenous at the clinic she goes to. she can give you a few more surggestion  then I could  I  think she said it work real well and the Vitamin C intravenous had and no side effects the doctors can use doses of  about 15 gram up to 50 grams of Vitamin C  depending how the doctor wants to treat your cancer there has been some pretty good results from this depending on the cancer you have is how much Vitamin C is used. if you wish  you can contack shemay at

--Message edited by CancerCompass staff. For personal protection, email address removed. Consider private reply. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html--

 or just go on the net and do a serch in google take care Ray  

 

On 6/11/2008 jcr65566 wrote:

 

On 6/10/2008 adaira wrote:

Hi there,

I had a lung biopsy on June 5, 2008, and received my results yesterday (June 9th).....adenocarcinoma.  A PET scan is scheduled for June 24th and from there, I guess it will be determined as to which route will be taken; surgery, or chemo/radiation.

Yesterday and this morning I have been on an emotional roller coaster.  About the time I think that the tears cannot flow anymore, they somehow manage to start again.  How does one handle it all?  Of course, I had to do research via the Internet as soon as I received "the verdict" and that did nothing to assure me that this could be beaten.  I live about a three hour drive from where I will be having treatment (PET will be 5 hr drive for me [one way of course]).

I am a female disabled veteran and in decent health other than having Dystonia.  2 yrs ago I had DBS (Deep Brain Stimulation) to help me gain control of my body again and now this comes along.

Thanks for your time,

adaira

hi  adaira  I know how you feel I’m an ex soldier I live in Australia  and I have cancer the doctors wont operate on me as to risky as Iv had heart problems in the pass so I had to find other ways to fight the cancer. has any one explained to you what cancer is how it works and how to help your body fight it on this site help is there it just takes a little while to respond sometimes as ever one on it either has censer or is caring for some one with cancer other people who help went doctors who have been fighting cancer not for years but for decades and wining first thing I ask to do was get detoxified go on the net and get a cause of cellular liquid zeolitte to remove the build up toxins from your body by the way cellular liquid zeolitte can not be taken if your on chemo the section thing stay away from simple sugars these are the sugar we put in tea coffee cakes cans of soda etc. yoy also will need to take large amounts of  antioxidants like Vitamin C  if you post me a message I can post you a really good cancer fighting diet it from a lady whose mum is fighting lung cancer and is wining. 5 hr drive that hard I been told by other cancer patient you have to have hope you have to want to live if you believe you are going to die you will. And you have to believe in your self. Will that all for now until next time adaira

God bless Ray  

 

Hello adaira  my computer hard drive went down and I lost a few things one of them was one of the cancer diets you ask me for. So this is the best I can do for now What I was advise to do to fight my cancer was to start taking two 1000mg tablets of Bi-O vitamin C at every meal  and don’t eat or drink any think that has Simple sugar in it these are the sugars we put into cups of tea Coffee cakes biscuits’ This is a copy of a post to me from Cancer compass member Shemay that helped me a lot

Thanks for your kind words of support and thank you for the information on Paw Paw. Yes, please do let us all know how it works out for you. The medical doctor who gives me the Intravenous vitamin C treatments began his career as a geneticist, went on to become a medical doctor, then studied further and now practices alternative and complementary medicine. He is highly respected in our community both as a medical practitioner and as a scientist. I will attach some information on Paw Paw from his site and also some on his recommendations for daily intake of ascorbic acid. (VitC) which I hope will be helpful for you and others as well. Best regards. Sheila_________________________ Throughout traditional societies there have been herbal preparations, alone or in combination, which have been used in the treatment of cancer. With today's scientific methods, many of these traditional herbs are being tested in attempts to categorize and elucidate the efficacy and mechanisms of action. Some of these herbs have been found to indeed be active and useful in a treatment program for cancers. One such herb is an extract of the Paw Paw tree. Paw Paw, also known as Indian Banana is an indigenous tree which grows in the Eastern Regions of North America, with some varieties found in the tropics and the South American Rain Forest. Graviola is member of this family. In exciting research done at Purdue University it has been found that an extract of Paw Paw twigs harvested at a particular time of year has high levels of a compound which has very specific actions on cancer cells. This preparation is well tolerated and does not interfere with other therapies such as chemotherapy and radiation. ____________________________ Vitamin C (Ascorbic Acid) and Self Care Vitamin C had been known to have anti viral activity since 1936. There are case studies showing VitC to have antiviral effects on the Pertussis virus (causes whooping cough), the cold virus, the Herpes virus, the Cytomegalovirus and an Influenza type virus. The Natural Killer Cells are the 'search and destroy' cells of the immune system. They search out viruses, bacteria and other foreign invaders, as well as altered cells such as cancer cells and after finding them, act to kill them. These cells have molecular pumps on their surfaces which concentrate VitC in order to form hydrogen peroxide amongst other things in order to carry out this activity. This is just one of the ways in which ascorbic acid acts as an immune stimulant. Antioxidant activity of Vitamin C During an infection there is a 'storm of free radical generation'. It is the damaging effects of free radicals on cell membranes, structural molecules such as collagen, enzymes and as such severely disrupts cellular functioning. This produces the tissues effects seen specific to the organ system in which the infection occurs. The body has its own enzyme system which neutralizes one type of free radical molecule-the superoxide molecule, is neutralized by the selenium added to a nutritional strategy in viral infections such as Hepatitis and HIV improves outcome. But the selenium-SOD system is specific to the superoxide radical and ineffective against other radical oxygen species. Vitamin C is nature's premeir antioxidant scavenger which stops free radicall damage. Human Beings all have a genetic disease; they lack the enzyme gulano lactate oxidase which finalizes the conversion of glucose to ascorbic acid (Vitamin C). Nearly all organisms on Earth have an enzyme system which converts glucose into the vital nutrient ascorbic acid. Humans, the higher primates, the guinea pig and the fruit bat all have genetic mutations which interferes with the cells ability to make ascorbic acid, thus making it imperative that they take in adequate amounts in their diet or as a supplement. In order to maintain cellular levels of vitamin c it is important to 'pulse' doses of vitamin c throught the day. Remember that all organisms, exscepting those mentioned above continuously make vitamin C from glucose in order to keep levels high. In humans a dose of vitamin C will last for about 6 hours in the blood, this is the rationale for the 'flow through' model of frequent dosing of this all important vitamin. In all cases in order for an effect to be seen dosage and frequency of the administration is of critical. A gram dose (1,000 mg = 1 gram) of Vitamin C has been shown to have minimal effects on the progress of the common cold and presumably would have little effect on more invasive, pathogenic viruses. A sustained intake of higher doses in the 2 to 5 gram range has been shown to have moderate effects. High levels of 10 to 70 grams may be required for effect on virulent, infections. Case studies indicate that intravenous Ascorbic Acid is effective in serious viral infections. Pulsing Vitamin C. An easy way of obtaining optimal levels of vitamin C is to take 500 - 1,000mg doses with each meal and at bedtime. (This gives a person the 2 to 4 gram amount that would be extrapolated from ascorbic acid synthesis in other organisms.) During times of infection or other illnesses which will increase free radical stress on the organism, higher amounts of vitamin C can be utilised to increase the effectiveness of the immune system and other repair systems of the body. In these cases 2 to 5 grams (2,000 to 5,000 mg) of VitC repeated every few hours is needed to counter the amounts of free radicals which are formed in these highly oxidative states. During a 24 hour period doses of 10 to 70 grams and more may be required to be maximally effective. At these high doses a certain amount of gastric upset, excess gas and increased stools will be experienced, in most cases these are well tolerated and do not interfere in the persons ability to take the supplement. In cases where one exceeds the amount of vitamin C that the gastric-intestinal tract can absorb the excess travels to the large bowel where it induces a liquidy diarrhea. In such cases so called 'bowel tolerance' has been achieved. If this is the case the person would cut back by 25% and decrease the frequency of taking the vitamin. This often happens when the illness process is abating and is often a sign that tapering the vitamin can be done. Drink plenty of fluids with these high doses of vitamin C. Vitamin C is also helpful and potentiates the effects of many other therapies, especially antibiotics. How to make a Vitamin C drink. An easy, effective, economical way of taking these optimal doses of VitaminC is in taking ascorbic acid in the pure crystaline powder form: 1/4 (one quarter) teaspoon is equal to 1 gram (1,000 mg). Take 1/4 to 1 (1,000mg to 5,000mg) teaspoon depending on the concentration you want, add a small amount of warm water to disolve the powder, then add your favourite juice and dilute with water. Sip this over an hour and you should easily assimilate the ascorbic acid without gastric upset. Experiment with juices and remember to drink plenty of water afterwards. Suitable juices include orange, grapefruit, apple, pear and apricot nectars, mango, grape, cranberry and pomegranate to mention a few. Vegetable juices are a good substitute if sugar intake is a concern. Many people find ascorbic acid powder in pure water to be a suitable way of taking the vitamin.