Just Had Peg Out And Help Or Tricks I Should Know?

I just got my peg out this morning one month after treatment and now I have this hole in my body.

I know I should be Happy that I am moveing along but nothing really makes me happy yet?!!?

I do not really feel great now will take it slow and still eat soft food plan on three scrambled eggs and some raw vegtables for lunch with a boost

I have a boost or ensure with all my meals.

john 

John, I got mine out yesterday (June 10th) at noon. I'm just a few days short of 4 months post treatment. I gotta say, you're a better man than me to be able to handle food and drink so soon after treatment. Even when I could swallow w/o pain, I couldn't overcome the terrible taste of all foods.

Yet after all this time, my R.O. did not want it out so soon. And the GI Doc yesterday really pressed me hard to wait a little longer. But even with some radiation sores in my mouth and throat paying me a visit, I'm very glad to be rid of it. You will feel no discomfort from here on out where the hole is. Yesterday it looked like I was gut shot with a .44 magnum, and 24 hrs. later it looks like only a .22 caliber. I did have some blood discharge - but that was only because I have been on blood thinner for 5 mos. due to blood clots. As I feel now, I'll be doing sit-ups and leg lifts starting tomorrow (I hope). I don't even have a bandage on today. I took a shower w/o the bandage put on yesterday.

Good luck, John, dealing with the other after affects you'll be dealing with in the coming months.

Steve

Congrats on another milestone. I couldnt wait to get rid of my PEG tube. I'm glad youre able to eat by mouth so soon, you beat me by about a month. Just keep the site clean and dry as possible, I had a bandage on mine for about a week or so. Cheer up a little, youre about at the point where you should start to fell better and better.

Welcome to the 2 belly button club.

Mike

Congrats on the recent PEG Tube removals. That was when I finally started to feel a bit more normal. Not having to worry about banging something against the PEG and hurting myself or pulling it out by accident.

Mike, I got a good chuckle out of your " Welcome to the 2nd belly button club "

My Best to everyone here

Hi Steve,

  Wow your story sounds so much like my husband!  He has sinus cancer and is about 2 months out from his last radiation and chemo and still has trouble with mouth sores, stuffy nose and difficulty eating due to food tasting bad.  He is also on coumadin due to blood clots in his lungs from PICC line. He has a PEG tube and still does 4 cans of jevity at night and is trying to eat during the day, but it is difficult.

 He is getting discouraged feels he should be past radiation and chemo affects by now, so your story helps to know it is not just him!

  I wish you all the best!

Kathy

Getting my PEG out was a great day (12/1/06), just a quick tug and it was over. The only lasting effect is the build up of scar tissue.  I can feel a little knot pushing on my stomach from the inside. Like something is trying to get out, think Alien. If I eat a big meal I can really feel it.

No one told me to expect it, so when I first started to feel it, I freaked out. I thought great, now I have stomach cancer :) 

On a side note, before my treatment started the nurse told me it would be a year before I felt somewhat normal again.  She was right.

Tom 

On 6/11/2008 scootie45 wrote:

Hi Steve,

  Wow your story sounds so much like my husband!  He has sinus cancer and is about 2 months out from his last radiation and chemo and still has trouble with mouth sores, stuffy nose and difficulty eating due to food tasting bad.  He is also on coumadin due to blood clots in his lungs from PICC line. He has a PEG tube and still does 4 cans of jevity at night and is trying to eat during the day, but it is difficult.

 He is getting discouraged feels he should be past radiation and chemo affects by now, so your story helps to know it is not just him!

  I wish you all the best!

Kathy

Hi Kathy,

           Please tell him not to get discouraged.I've had my peg in for 9 months now. Still can't get much food in as is very hard to swallow. I had cancer at the base of my tongue that was treated with 3 rounds of chemo and 35 radiation treatments.I still do the exercises every day but am not having much luck yet. I look at every day as a blessing to be alive.

Hi: I had a tube in for nine months and it's been out now for four months. I had BOT cancer and the radiation did a lot of damage to my throat.  Each of us has different conditions so we won't have the same reaction.  As to me, I still can only eat thin foods (items not chewey and with lots of gravy) I had to have a throat operation after the tube came out in order to swallow.  The hole in my stomach looks like a second belly button but continually shrinks.  I lost a lot of weight after the tube removal so you out there thinking of getting it out early should be wary.  While the jevity is boring it does maintain your physical condition.  Like all that has to do with cancer it takes time but if you give it time this too will pass.

Good luck and god bless to you all. Ed

Hey John,

Congratulations! My PEG fell out in a laundromat. Kind of embarrassing.  There's only one bit of advice I can give...enjoy every meal that you eat from now on!

Good Luck!

Joe