kidney cancer metastized to lungs!!help needed!!

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kidney cancer metastized to lungs!!help needed!!

by carol_anne on Thu Jun 19, 2008 12:00 AM

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My brother was disgnosed with kdney cancer early April 08 and had his right kidney removed on April22 08. It was also discovered thru a scan that he had multiple spots on both lungs. I am the older sister so I went with my brother on Monday June 16 08 to the oncologist. He stated the facts to us. He said that there were too many small tumors to  operate and this type of cancer was incurable but it was treatable. What does this mean??Right now he has put him on a female horomone to try to put some weight on. He is only 120lbs. He said they will do another scan of the lungs in a month. If the tumors are not growing he said he will do nothing but if they are getting getting larger he will try him on sutent. Here in Canada they told us it is 50,000 for the year. Really pricey but who cares as long as it helps. Are there alot of side effects to this drug??. I am very new to this cancer thing and any help would be so greatly appreciated. My mother dies 12 months ago of Alzheimers disease Dad  of cancer a few years earlier and this is my only brother and no sisters. I do have a husband and 3 girls but I have always been close to my brother. God Bless Everyone!

RE: kidney cancer metastized to lungs!!help needed!!

by jorolo1 on Thu Jun 19, 2008 12:00 AM

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On 6/19/2008 carol anne wrote:

My brother was disgnosed with kdney cancer early April 08 and had his right kidney removed on April22 08. It was also discovered thru a scan that he had multiple spots on both lungs. I am the older sister so I went with my brother on Monday June 16 08 to the oncologist. He stated the facts to us. He said that there were too many small tumors to  operate and this type of cancer was incurable but it was treatable. What does this mean??Right now he has put him on a female horomone to try to put some weight on. He is only 120lbs. He said they will do another scan of the lungs in a month. If the tumors are not growing he said he will do nothing but if they are getting getting larger he will try him on sutent. Here in Canada they told us it is 50,000 for the year. Really pricey but who cares as long as it helps. Are there alot of side effects to this drug??. I am very new to this cancer thing and any help would be so greatly appreciated. My mother dies 12 months ago of Alzheimers disease Dad  of cancer a few years earlier and this is my only brother and no sisters. I do have a husband and 3 girls but I have always been close to my brother. God Bless Everyone!
                    Hi! Carol

                               I'm sorry about your brother, I too have mets to my lung . I've been taking Sutent  for 5 cycles (28 days on 14 off) @ 50 mg. Side effects are mostly fatigue hand-foot syndrome and alot more . But it has kept my cancer stable. If price is a problem there are places to get help. Hope he gets on treatment soon, keep us posted on his progress. Take Care                                       John

RE: kidney cancer metastized to lungs!!help needed!!

by carol_anne on Thu Jun 19, 2008 12:00 AM

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On 6/19/2008 jorolo1 wrote:

 

On 6/19/2008 carol anne wrote:

My brother was disgnosed with kdney cancer early April 08 and had his right kidney removed on April22 08. It was also discovered thru a scan that he had multiple spots on both lungs. I am the older sister so I went with my brother on Monday June 16 08 to the oncologist. He stated the facts to us. He said that there were too many small tumors to  operate and this type of cancer was incurable but it was treatable. What does this mean??Right now he has put him on a female horomone to try to put some weight on. He is only 120lbs. He said they will do another scan of the lungs in a month. If the tumors are not growing he said he will do nothing but if they are getting getting larger he will try him on sutent. Here in Canada they told us it is 50,000 for the year. Really pricey but who cares as long as it helps. Are there alot of side effects to this drug??. I am very new to this cancer thing and any help would be so greatly appreciated. My mother dies 12 months ago of Alzheimers disease Dad  of cancer a few years earlier and this is my only brother and no sisters. I do have a husband and 3 girls but I have always been close to my brother. God Bless Everyone!
                    Hi! Carol

                               I'm sorry about your brother, I too have mets to my lung . I've been taking Sutent  for 5 cycles (28 days on 14 off) @ 50 mg. Side effects are mostly fatigue hand-foot syndrome and alot more . But it has kept my cancer stable. If price is a problem there are places to get help. Hope he gets on treatment soon, keep us posted on his progress. Take Care                                       John


 

John thanks so much for such a speedy reply. I am trying to keep positive because if you think positive anything can happen. I truly believe that our spirits can heal our physcial bodies. You can give a patient a diagnosis but I think  only God decides when we  leave this earth. On a more positive note does anyone know the difference between God and a Doctor??God knows he isnt a Doctor. God Bless!!

RE: kidney cancer metastized to lungs!!help needed!!

by KatrinaR on Thu Jun 19, 2008 12:00 AM

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Carol Anne.

I want to first say that when the Dr. says it is treatable - they explained it to my us as "There is no cure for Renal Cell Cancer, but it can be treated."  "Just like there is no cure for High Blood Pressure, Heart Disease, Diabeties, there are treatments but no cure"  So look at it that way.  There are people out there who have been living with Renal Cell Cancer for a very long time.  One person I know of for 11 years.  So there is hope out there.  You need to find the right drug as we too are searching for.  It gets very discouraging when you hear bad news and I've been told it is going to be a roller coaster more downs than ups, so keep strong for your brother and hopefully you too have someone to confide in.  Every person is different in many ways so can't take all bad news to heart and hope all the success stories apply to your brother.  My husband was diagnosed same time as your brother, let me share our experiences:  My husband Rich (72) had his left kidney removed April 08.  Three months later had follow up CT and found that the cancer came back.  Mass in Psoas Muscle (lower left back) and a dozen nodules spread to his lungs.  He did 23 treatments of radiation on the Psoas muscle.  After that was done, the started him on Sutent 37.5 mg - 4 weeks on 2 weeks off.  Side affects were fatigue, sore feet, mouth sores (minor), numb in the fingers, sore butt cheeks and loss of taste buds.  He did three rounds of this.  Had CT scan and show that the Psoas muscle decreased in size and 3 nodules in lungs increased and another one appeared.  Switched to Nexavar on April 17th.  4 pills daily 200mg each two in a.m., two in p.m. - same side affects.  Had CT on June 12th and showed that nodules in lungs again got larger and another one appeared.  Psoas muscle again got smaller.  This is important and good news about the Psoas muscle as if this mass goes to the bone, there is a chance of him not walking.  So now starting Monday 6/23 he is starting IV of Torisel once per week. Rich started a cough about a week ago and the CT showed a little fluid build up in his right lung.  He has to sleep practically sitting up as when he lays down causes him to cough.  Dr. has him on cough suppressent and hoping the treatments will take care of the fluid build up.  But I must say and suggest that you ask any questions you may have no matter how stupied you may think they are.  Write down everything and always feel free to talk to Dr. or his assigned nurse.  Please keep me posted on your brother and feel free to ask me anything any time and I will try to share experiences with you.  My best to you both.

KatrinaR

On 6/19/2008 carol anne wrote:

My brother was disgnosed with kdney cancer early April 08 and had his right kidney removed on April22 08. It was also discovered thru a scan that he had multiple spots on both lungs. I am the older sister so I went with my brother on Monday June 16 08 to the oncologist. He stated the facts to us. He said that there were too many small tumors to  operate and this type of cancer was incurable but it was treatable. What does this mean??Right now he has put him on a female horomone to try to put some weight on. He is only 120lbs. He said they will do another scan of the lungs in a month. If the tumors are not growing he said he will do nothing but if they are getting getting larger he will try him on sutent. Here in Canada they told us it is 50,000 for the year. Really pricey but who cares as long as it helps. Are there alot of side effects to this drug??. I am very new to this cancer thing and any help would be so greatly appreciated. My mother dies 12 months ago of Alzheimers disease Dad  of cancer a few years earlier and this is my only brother and no sisters. I do have a husband and 3 girls but I have always been close to my brother. God Bless Everyone!

 

RE: kidney cancer metastized to lungs!!help needed!!

by Shemay on Thu Jun 19, 2008 12:00 AM

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On 6/19/2008 carol anne wrote:

My brother was disgnosed with kdney cancer early April 08 and had his right kidney removed on April22 08. It was also discovered thru a scan that he had multiple spots on both lungs. I am the older sister so I went with my brother on Monday June 16 08 to the oncologist. He stated the facts to us. He said that there were too many small tumors to  operate and this type of cancer was incurable but it was treatable. What does this mean??Right now he has put him on a female horomone to try to put some weight on. He is only 120lbs. He said they will do another scan of the lungs in a month. If the tumors are not growing he said he will do nothing but if they are getting getting larger he will try him on sutent. Here in Canada they told us it is 50,000 for the year. Really pricey but who cares as long as it helps. Are there alot of side effects to this drug??. I am very new to this cancer thing and any help would be so greatly appreciated. My mother dies 12 months ago of Alzheimers disease Dad  of cancer a few years earlier and this is my only brother and no sisters. I do have a husband and 3 girls but I have always been close to my brother. God Bless Everyone!

Hello carol anne from a fellow Canadian. I hope you find this link helpful. I personally take these treatments and know others from a clinic I go to who have also had good success for a variety of cancers using Intravenous Vitamin C. If you'd like more information on it let me know........http://www.medpagetoday.com/HematologyOncology/OtherCancers/

RE: kidney cancer metastized to lungs!!help needed!!

by carol_anne on Thu Jun 19, 2008 12:00 AM

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thanks so much Katrina for all your words of encouragement. People on this site are trult amazing. I also wish you and your husband all the best and I will paray for him. Hope to talk toy you again soon

RE: kidney cancer metastized to lungs!!help needed!!

by charly on Fri Jun 20, 2008 12:00 AM

Quote | Reply

 

On 6/19/2008 carol anne wrote:

My brother was disgnosed with kdney cancer early April 08 and had his right kidney removed on April22 08. It was also discovered thru a scan that he had multiple spots on both lungs. I am the older sister so I went with my brother on Monday June 16 08 to the oncologist. He stated the facts to us. He said that there were too many small tumors to  operate and this type of cancer was incurable but it was treatable. What does this mean??Right now he has put him on a female horomone to try to put some weight on. He is only 120lbs. He said they will do another scan of the lungs in a month. If the tumors are not growing he said he will do nothing but if they are getting getting larger he will try him on sutent. Here in Canada they told us it is 50,000 for the year. Really pricey but who cares as long as it helps. Are there alot of side effects to this drug??. I am very new to this cancer thing and any help would be so greatly appreciated. My mother dies 12 months ago of Alzheimers disease Dad  of cancer a few years earlier and this is my only brother and no sisters. I do have a husband and 3 girls but I have always been close to my brother. God Bless Everyone!

I hear your agony I was diagnosed  april 07 I did alternative therapy for one year which did nothing. I went on sutent on may 6 of 08.the side effect took about 2 weeks to show up but yes there are a lot of side effects but he needs to be on it. I took it for 20 days ubtill the dr stopped it because of the side effects.In those 20 days the tumors in my lungs had begun to shrink already,the dr has ordered a bunch of tests before I can go back on it, heart tests breathing ect because those were the type of symptoms i was having, i want then to hurry and get me back on it at a half dose .25,I know it will help and the sides will be less/I hope the dr puts your brother on it quickly.I should never have waited a year,God bless you

bobtail2

RE: kidney cancer metastized to lungs!!help needed!!

by charly on Fri Jun 20, 2008 12:00 AM

Quote | Reply

 

On 6/20/2008 charly wrote:

 

On 6/19/2008 carol anne wrote:

My brother was disgnosed with kdney cancer early April 08 and had his right kidney removed on April22 08. It was also discovered thru a scan that he had multiple spots on both lungs. I am the older sister so I went with my brother on Monday June 16 08 to the oncologist. He stated the facts to us. He said that there were too many small tumors to  operate and this type of cancer was incurable but it was treatable. What does this mean??Right now he has put him on a female horomone to try to put some weight on. He is only 120lbs. He said they will do another scan of the lungs in a month. If the tumors are not growing he said he will do nothing but if they are getting getting larger he will try him on sutent. Here in Canada they told us it is 50,000 for the year. Really pricey but who cares as long as it helps. Are there alot of side effects to this drug??. I am very new to this cancer thing and any help would be so greatly appreciated. My mother dies 12 months ago of Alzheimers disease Dad  of cancer a few years earlier and this is my only brother and no sisters. I do have a husband and 3 girls but I have always been close to my brother. God Bless Everyone!

I hear your agony I was diagnosed  april 07 I did alternative therapy for one year which did nothing. I went on sutent on may 6 of 08.the side effect took about 2 weeks to show up but yes there are a lot of side effects but he needs to be on it. I took it for 20 days ubtill the dr stopped it because of the side effects.In those 20 days the tumors in my lungs had begun to shrink already,the dr has ordered a bunch of tests before I can go back on it, heart tests breathing ect because those were the type of symptoms i was having, i want then to hurry and get me back on it at a half dose .25,I know it will help and the sides will be less/I hope the dr puts your brother on it quickly.I should never have waited a year,God bless you

bobtail2

I forg ot to add that here in Canada there is a compassionate program back in effect .I do not pay for my sutent, the gov does.  bobtail2

 

RE: kidney cancer metastized to lungs!!help needed!!

by carol_anne on Fri Jun 20, 2008 12:00 AM

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thanks so much BOBTAIL2   for your knid words of encouragement. I hope and pray that you will beat this disease too!God Bless Everyone!!

RE: kidney cancer metastized to lungs!!help needed!!

by Lee_G on Fri Jun 20, 2008 12:00 AM

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HI, carol anne,  I have been on sutent 50mg for 3 cycles, my main side effects is fatique and diahrea.  I feel pretty lousy for a few weeks then pretty good for a couple of weeks. I take sutent for 28 days then off 14 days. Doctor gave me protonix for acid reflux, works great and also helped alot  with my diahrea. There are a lot of side effects with sutent each persons can be different. You can search the web for sutent and find sites with alot of info. Yes sutent is very high priced, sutent is made by pfizer, you can go to their web site and they say if you cannot afford drug they maybe able to help.  This is my 3rd bout with rcc, this time in my nodes and rt lung. With the help of God i have been fighting this for 9 yrs, they keep coming up with new treatments all the time, so keep the faith and a positive attitude and a little sun will shine each day.  God Bless. Lee G 
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