Does Anyone Know About Sarcomatoid Carcinoma of The Lungs?

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Does Anyone Know About Sarcomatoid Carcinoma of The Lungs?

by Barbzie on Thu Jul 21, 2005 12:00 AM

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My dad was diagnosed with this today and according to the doctors, it's a very rare form of lung cancer, with only 5% of lung cancer patients having this. My dad's left lung is filled with fluid and the lung has no room to expand. They've tried to drain another portion of the lung and extracted out 2 1/2 liters of fluid two weeks ago, now he's back in again. Anything anyone can share about this disease would be very much appreciated. My dad's an active, independent, rugged 80-year-old. Thank you so much, Barbzie

Sarcomatoid Carcinoma of The Lungs

by Tangledupinblue on Sat Aug 13, 2005 12:00 AM

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Today my mother was diagnosed with sarcomatoid carcinoma - one lung is full of it inside and out, she had a small lump on her head they removed and has a small lump in her upper shoulder area. We were told this is relatively rare, tests are still be conducted... also - they cannot pinpoint the source but say that it could have been renal or uterine. She’s 70, all three masses developed and presented in one year. They said it spreads like cluster bombs from the originating tumor. With a full body scan and more testing of the biopsies taken from her lung they feel they'll be able to identify the origination point and then recommend specific therapy. Any information others might have to share on this diagnosis would be greatly appreciated, thank you Debra

Sarcomatoid Carcinoma

by Barbzie on Mon Aug 15, 2005 12:00 AM

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Dear Debra, I'm so sorry to hear about your mom. My dad was diagnosed with this disease just about a month ago, came home with hospice care about three weeks ago (radiation wasn't possible and chemo was not recommended because it was thought that chemo would shorten his life, not lengthen it). In the last three weeks, Dad has been on oxygen 24/7 and having breathing treatments every four hours or so, liquid morphine as needed throughout the day, slow-acting morphine every twelve hours, plus many other meds. He has gotten weaker by the day. The dying process is certainly taking its course. He came home a six-foot, 200 pound strong, independent man, and now, weeks later has lost tons of weight and can't turn from his back to his side in bed without it taking everything out of him. He was very active this May, when we celebrated his 80th birthday, doing all kinds of yardwork, home repairs, really manly stuff. Weeks later he was short of breath, then went to the hospital, and just like that---inoperable lung cancer with no treatments possible. Dad struggles with breathing---just a little exertion makes him huff and puff so much, his chest heaving so strongly. It breaks your heart. I've been praying for a minimum of suffering, and God has been faithful, in that my dad says he feels little pain, only the inability to breathe. It's a panicky feeling to not be able to sleep because you're worried you may not be able to breathe and may not wake up. That's one of the things he deals with. Also giving up independence and modesty when it comes to incontinence, etc. And just a month ago he was chatting and facing the future, but ready to come home and live out some quality time with my wonderful mom, who at 78 has more energy and stamina than me at 51. She's there for him at all times and gets very little uninterrupted sleep. Us kids all help out, but we all live a distance away, with me being five hours and my sis being 2.5 hours, brother 45 minutes. It's a day by day process. We just call Mom in the morning to see how the night went and go from there. I hope you have a chance to have some time with your mom, and that she doesn't suffer too much also. God bless you and your family, Debra. You are in my prayers.

Please Contact Me, my Daddy Passed Away From This in July

by Missmydaddy on Tue Oct 18, 2005 12:00 AM

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I am anxious to talk to you about your Daddy. Mine age 67 passed away this past July from this nasty disease. Please can you write me? Thank you, Michele from Calif

Missmydaddy

by Missingtata on Sun Nov 20, 2005 12:00 AM

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Hi Michele, My dad died from this cancer on Oct. 14th. He had a tumor in his left lung and one in the stomach. He was 78 yrs. old. His birthday was on Sept. 10th. He just retired on July 30th. He was diagnosed on Aug. 30th. He was told there was nothing that could be done other than to make him comfortable. He did have 1 chemo treatment only because his doctor thought he was strong enough to take it. Although he only lasted six weeks after his diagnosed, he did not suffer. Those six weeks were the most painful yet most precious day in my life. I ws able to talk to my dad about his funeral wishes. I thanked him for all that he did for us (family). We laughed alot. I have 3 brothers and 2 sisters, we all took turns taking care of him. He and my mother were so strong, they kept us strong. I live in Houston, my dad in Corpus Christi; I prayed that I would be with him till the end. And God answered my prayers. I was with him the last week of his life. We had a "good" time. He didn't seem that ill for that week. My father told me that Jesus was calling him and he was ready to go when his time came. My parents are very strong in faith. My Dad went with Jesus ant 8:32PM on Oct. 14th. Everything and everyone was at peace. For some reason I am NOW having a hard time. My days are dark. I feel that I can't breath at times. My dad's death is my first experience with losing a close relative. I am very happy that he is in heaven, I guess I just miss him so much. I hope to hear from you. I have many friends, but I feel that I am alone in this. I hope to hear from you and about your dad, and how you are coping with your loss.

Your Dear Daddy

by Missmydaddy on Sun Nov 20, 2005 12:00 AM

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Hi Sweetie, I know the dark days. I want to tell you aren't alone. I am still grieving and it seems like it isn't gettin easier. Daddy was diagnosed then in 4 days he was gone. It has been horrible. We had an autopsy done of just his lungs because everything happend so fast. It came back and we didn't understand it. It was not very thorough. We are asking for another pathologist to review it. Daddy's father (my Grandpa) lived to be 101. Daddy didn't smoke and was really healthy except for this. It is hard to make sense of it all. I don't know if I am allowed to give you personal email but it is --- Message edited by CancerCompass staff: for personal protection, email address removed. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html --- if you want to write to me privately. Know that my thoughts and prayers are with you. I hope to hear from you soon. Michele from Calif. Daddy passed July 29th.

Missmydaddy

by Missingtata on Mon Nov 21, 2005 12:00 AM

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Hi Michele, I am so glad that you responded. Your email address is protected by the privacy act, so I didn't get it. I don't know how else we can communicate. "Tata" is what we called my dad. My name is Terri. I would love to continue talking with you. I feel the need to share my feelings as well as listen to your experience. I have a slight anger because I was not ready for my dad to leave. But, I know that we will never be ready. How are you dealing with the holidays? I am trying so hard to stay in the spirit of the holidays for my 2 kids (age 8, & 11)but it sure is hard. I keep in mind that my dad was not a sad man but a man full of life and happiness. He loved to joked around with everybody. Everyone knew him, the bank, grocery store, church, post office, etc. His words were "gotta keep going!". I hope to hear from you. I hope that your holidays are filled with the happy memories of your father. my email is --- Message edited by CancerCompass staff: for personal protection, email address removed. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html --- I don't know if you will get my email address. my number is --- Message edited by CancerCompass staff: for personal protection, phone number removed. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html ---. Take care and God Bless You.

Sarcomatoid Carcinoma of The Lung-our Family's Experience

by Sherry46 on Tue Oct 31, 2006 12:00 AM

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I just stumbled onto this website and read your message. First I just want you to know how sorry I am about your father. I lost my mother to lung cancer (adenocarcinoma)in 2003 and was devastated. Then my brother-in-law was diagnosed with carcino sarcoma(a tumor in his lung which was affecting a bronchial tube as well)in December 2004. He was 58 years old and we had been brother-in-law & sister-in-law since we were 19 years old....more like my brother. He had part of his lung removed and was given 6 to 18 months to live even with a very strong chemo which they said would incapacitate him. He opted to juice organic carrots and saw a woman who has studied in great detail about herbal supplements. He drank a special tea (Ta Hee Bu) - I'm not sure about the spelling. He also has been taking several other supplements and does an almost all organic diet. He just had a PET scan and there are no traces of recurrence. It will be 2 years in December. He looks and feels great. He is a very strong willed person. There has also been an enormous outpouring of prayer on his behalf. Had he done the chemo, I feel he would have been gone. We have had so much cancer in our family and the outcome has never been this good and all the others have taken the chemo. It is such a hard decision to go against what the doctors are advising but in his case it was the best decision. I hope this helps others in his situation in some small way.

RE: Does Anyone Know About Sarcomatoid Carcinoma of The Lungs?

by Margurette_12 on Mon Sep 08, 2008 12:00 AM

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My husband was just diagnosed with sarcomatoid carcinoma and I really don't know anything about it. Will the radiation treatments help it??

RE: Does Anyone Know About Sarcomatoid Carcinoma of The Lungs?

by JohnD_1 on Fri Jan 09, 2009 12:00 AM

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My dad has been diagnosed with Sarcomatoid Carcinoma in Aug after a large mass had been seen connected to his lung, heart, and diaphragm.  He had it removed and the tumor began advancing rapidly.  He has too many tumors currently to radiated completely, however you can radiate in high doses some trouble areas.  If your husband is experiencing any pain caused by the tumors they can destroy some specific areas.  This is what they did with my dad.  Also, he is currently on Iphosphomide and the first round of chemo was teribble.  They gave him such a high dose in two days about 14.6 total that it made him go insane and loose 3 days.  He had no idea what was going on, but on the brighter side it seemed to work.  He is now on a much lower dose which I fear may not have as great of an affect on the tumors, but the first round did work.  The first line chemo or the Carboplatin, taxol combo did nothing.   If you have any questions feel free to write me back, I notice your post was back in Sept and am not sure you check this site.
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