Neobladder Question

Hello,

My mom had a radical cystectomy on 6/6/08 and is home now recovering. She had her foley catheter removed last week. Everything seems to be going fine, with the exception of she is constantly "leaking" when she moves. From the information that I have read online, this may be a somewhat normal occurence and will lessen with time? Any advice that you can give me to pass along to my mom on hope to cope/train her neobladder will be greatly appreciated!!

Kind Regards,

Kristin 

Hi,

My brother is 30 years old and just had the Neobladder. I was wondering if anyone has responded to your question. My brother has had the catherder removed for just a few days and he is becoming depressed because he is leaking. Have you found out how long this may last?

Hello,

I was told by a Physician's Assistant that the first 1-2 months will be the worst as far as leaking is concerned. He said that it is perfectly normal to be going through 12 pads a day, which my mom is doing. As time goes by, she is beginning to be able to control her neobladder more and more. I hope that your brother's recovery goes well! I'd be happy to share with you any of the experiences that we have gone through thus far. I will keep you and your brother in my prayers. Take care.

Kind Regards,

Kristin

My husband had a neobladder in October.  He is generally continent during the day but continues to have problems at night, especailly following chemo treatments.  Because he no longer has the sensation that the bladder is full, he empties it on timed scheduled.  For months he set an alarm to go off every 2 hours during the night.  Needless to say neither one of use got a decent night's sleep. 

Sleep deprivation encouraged me to take on an exhaustive search of incontinence products.  The solution we found is by a company called Alphadry.  The device's top looks and functions much like a condom that is attached to a small bag that prevents the backflow of urine.   The company advertises that a similar product is used by the astronauts while in space.  It has been a godsend.  Our bed remains dry and he is now able to sleep through the night. 

Good luck to your brother.