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Colon Cancer Stage Iv With Paraneoplastic Syndrome. Please Help!

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Subject: Colon cancer stage IV with paraneoplastic syndrome. Please help!
Date: 07/03/2008

I am 25 years olds. I was found to have anemia, black stool and every symptoms of colon cancer. I also fell the tumors in my belly. Importantly, i have bladder cancer symptoms, liver cancer symptoms and paraneoplastic syndrome. Can any one please tell me how serious it is and please help! I will have colonoscope next two weeks but I plan to go to hospital again tomorrow because of the a paraneoplastic syndrome related to hypercoagulability of the blood (the blood is "thickened").

Please help as soon as possible!

Subject: RE: Colon cancer stage IV with paraneoplastic syndrome. Please help!
Date: 07/03/2008

Hi!  I am so sorry that you are not feeling well.  Have you actually been diagnosed with cancer, or are you just afraid that you have cancer because of the symptoms that you are having?  Jenny

Subject: RE: Colon cancer stage IV with paraneoplastic syndrome. Please help!
Date: 07/04/2008

 

On 7/3/2008 Jenny7 wrote:

Hi!  I am so sorry that you are not feeling well.  Have you actually been diagnosed with cancer, or are you just afraid that you have cancer because of the symptoms that you are having?  Jenny

Jenny7

Thank you for your reply. I haven't been diagnosed with cancer and I will have to go through colonoscope in next two weeks. But the symptoms i read online make me very worried. It is just exactly the same like blood in stool, black blood and so on. do you have any idea about Colon cancer stage IV with paraneoplastic syndrome?. Do you know anyone with this symptoms are surviving?

 

Subject: RE: Colon cancer stage IV with paraneoplastic syndrome. Please help!
Date: 07/04/2008

 

On 7/3/2008 HokChin wrote:

I am 25 years olds. I was found to have anemia, black stool and every symptoms of colon cancer. I also fell the tumors in my belly. Importantly, i have bladder cancer symptoms, liver cancer symptoms and paraneoplastic syndrome. Can any one please tell me how serious it is and please help! I will have colonoscope next two weeks but I plan to go to hospital again tomorrow because of the a paraneoplastic syndrome related to hypercoagulability of the blood (the blood is "thickened").

Please help as soon as possible!

Hi!  I am having trouble getting my message to "send", so if you get it two or three times, I do apologize!

Information on the internet can be incredibly useful, but can cause misunderstandings, as well. If you are not medically trained, it can be hard to understand and you sometimes only get part of the information.

Symptoms can be deceiving. For instance, my husband was diagnosed in 2002 with Stage IV metastatic colon cancer and he had NO symptoms...he felt great.  I had a neighbor in my kitchen earlier this week and she was upset and crying because she was sure that she had lung cancer.  A test had shown spots on both lungs, and she was scheduled for further testing.  She is a heavy smoker, and she was really scared.  Turns out the "spots" were shadows, and her lungs are clear as a bell.  She put herself through days of torture when there was nothing real to worry about!

I am not familiar with paraneoplastic syndrome, so I can't address that .  I CAN tell you that my husband has survived six years, and he is doing well.  I am not downplaying the seriousness of the disease, but many advances have been made, and it is possible to live a long time with good quality of life.  Some people are even cured!

I hope that you will sit quietly and realize that you are worrying about a situation that doesn't exist right this minute. When you have all the tests and some real information, you can make decisions.  If you don't have cancer, you are putting yourself through unecessary stress.  If you do have cancer, you will need to be rested and in a good frame of mind to get through it.

Best wishes, Jenny

Subject: RE: Colon cancer stage IV with paraneoplastic syndrome. Please help!
Date: 07/04/2008

 

On 7/3/2008 HokChin wrote:

I am 25 years olds. I was found to have anemia, black stool and every symptoms of colon cancer. I also fell the tumors in my belly. Importantly, i have bladder cancer symptoms, liver cancer symptoms and paraneoplastic syndrome. Can any one please tell me how serious it is and please help! I will have colonoscope next two weeks but I plan to go to hospital again tomorrow because of the a paraneoplastic syndrome related to hypercoagulability of the blood (the blood is "thickened").

Please help as soon as possible!


Hi,

You are too young to thing that you have cancer. The symptoms that you described (anemia, black stool) can be from other deseases like ulcus duodeni, hemoroids. I think that it is absolytely mediclly inpossible to have all together colon cancer symptoms, liver cancer s., bladder c.s.

Be positive and optimistic, you have all life in front of you.

Good luck

Subject: RE: Colon cancer stage IV with paraneoplastic syndrome. Please help!
Date: 07/04/2008

Jenny7, Asilvana, et all

Paraneoplastic syndrome is related hypercoagulability. The blood becomes thicker that make it run slower. So the body is starve of Oxygen. It can cause heart attack or stroke that are fatal. I am very worried about it. I can't sleep more than 4 hours. I will be wake up by this syndrome in less than 4 hours. Do you know have any idea about how to cope with this syndrome.

Anyone can help, please!!!

Patient
Patient
gingertwst1
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Subject: RE: Colon cancer stage IV with paraneoplastic syndrome. Please help!
Date: 07/17/2008

This is what I found out about your disease

What are Paraneoplastic Syndromes?
Paraneoplastic syndromes are a group of rare degenerative disorders that are triggered by a person's immune system response to a neoplasm, or cancerous tumor. Neurologic paraneoplastic syndromes are believed to occur when cancer-fighting antibodies or white blood cells known as T cells mistakenly attack normal cells in the nervous system. These disorders typically affect middle-aged to older persons and are most common in persons with lung, ovarian, lymphatic, or breast cancer. Neurologic symptoms generally develop over a period of days to weeks and usually occur prior to tumor detection, which can complicate diagnosis. These symptoms may include difficulty in walking and/or swallowing, loss of muscle tone, loss of fine motor coordination, slurred speech, memory loss, vision problems, sleep disturbances, dementia, seizures, sensory loss in the limbs, and vertigo. Neurologic paraneoplastic syndromes include Lambert-Eaton myasthenic syndrome, stiff-person syndrome, encephalomyelitis (inflammation of the brain and spinal cord), myasthenia gravis, cerebellar degeneration, limbic and/or brainstem encephalitis, neuromyotonia, and opsoclonus (involving eye movement) and sensory neuropathy.

Is there any treatment?

The cancer is treated first, followed by efforts to decrease the autoimmune response - either through steroids such as cortisone or prednisone, high-dose intravenous immunoglobulin, or irradiation. Plasmapheresis, a process that cleanses antibodies from the blood, may ease symptoms in patients with paraneoplastic disorders that affect the peripheral nervous system. Speech and physical therapy may help patients regain some functions.

The cancer is treated first, followed by efforts to decrease the autoimmune response - either through steroids such as cortisone or prednisone, high-dose intravenous immunoglobulin, or irradiation. Plasmapheresis, a process that cleanses antibodies from the blood, may ease symptoms in patients with paraneoplastic disorders that affect the peripheral nervous system. Speech and physical therapy may help patients regain some functions.
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