My husband was DX11/7/07 GBM had surgery 12/13/08 they had to leave two fingers in. He went on 32 treatments of radiation and temador at the same time. Then they started the 23/7. An MRI was done with inconclusive findings so they put him on Avastan/CPT11 every two weeks. He has now finished 4 treatments and an MRI is to be done on the 10th.
The first two times he had the infusion of Avastan/Cptll he was out of sorts for a week. Then the third time it only took a couple of days to get back to feeling decent. This time its 5 days after treatment and he is weak as a kitten. His stomach is fine HIs head is fine he just is so tired and weak. He also is on Dilantun for 200 mg a day to avoid seizures. No Decadron for at least 8 weeks.
I was hoping to talk to the doctor and see if they could get rid of the CPTll as that is the one that makes him so sick. Has anyone heard of them doing this. He is just so depressed cause he feels like he should at least be able to help around the house and be useful. This is no time for him to start thinking about giving up. His blood work is normal , no blood pressure problems.
Just curious is this is (normal-whatever that is) when you are on Avastin.
This site is great and it has helped me get through this ordeal. Thanks for listening.
Eulah.